This winter, the Rhode Island Department of Health has introduced legislation via Rhode Island lawmakers to track the complete medical records of every person in our state. This RIDOH Registry would extend our current mandatory tracking system from all minors to all adults as well. House Bill 7882 and Senate Bill 2530 would let the RIDOH legally data mine the personal medical information of every adult and child in Rhode Island.
If H-7882 and S-2530 are passed, the Department of Health will track all sensitive and private medical information for all people in our state. RIDOH will have unrestricted knowledge of medications we are taking, medical procedures we have had, pregnancies, counseling services, mental health, and all medical choices we have made.
There is no opt-out of the registry. If passed, it will be mandatory. According the language of the bills, “Any person may opt out of the disclosure of their immunization status by contacting the department of health.” What about the rest of the registry? This bill violates the right to informed consent as well as privacy. We as human beings, have the right to say “no” to imposed data collection of our personal records.
KIDSNET, our current no-opt-out, mandatory tracking system for all minors in Rhode Island, even collects our children’s Social Security numbers. RIDOH does not list the “participating programs” that have access to the Social Security numbers and private medical records of our children. Furthermore, “parental consent to include children’s data is not required.”
Any tracking system should always respect the human right to informed consent. KIDSNET should be an opt-in-only system that requires a signature in order for data to be collected in the first place. Meanwhile, these draconian adult registry bills should be permanently put to rest.
These alarmingly invasive bills violate our core right to privacy. They additionally raise several deeply concerning questions about the RIDOH:
Why does our state health department want to track our personal data? How does the RIDOH justify legislation that removes the basic tenant of informed consent? Once our data is collected, what recourse would citizens have to protect our information from hackers? How would people ensure that their private medical choices will not be used against them in the future? Does the RIDOH expect taxpayers to fund this massive and costly registry?
In 2017, voices of all kinds began to speak out with their truths. Individuals are joining the collective chorus of outrage as we declare, “Enough is enough.” The time is ripe for Rhode Islanders of all races, genders, cultures, abilities and backgrounds to claim our inherent rights to privacy, choice and informed consent for ourselves and our children.
If we wish to maintain our core freedoms, we must all tell our lawmakers that we do not want to be forced into a mandatory tracking system by our government. House Bill 7882 will be heard by the Health, Education and Welfare Committee in Room 101 of the Rhode Island State House within the next few weeks. Let our representatives know that Rhode Islanders do not wish to be forcefully tracked by the Rhode Island Department of Health or any other government agency.
Maddalena Cirignotta, of Wakefield
Volunteer for Rhode Islanders against Mandated HPV vaccinations
Rhode Island Wellness Society
Facebook event about this house bill and others on Wed 28th 4pm at statehouse
The House Health, Education, and Welfare committee in the RI statehouse will hear four bills that relate to the topic of informed consent and the HPV vaccine.
3 bills are good bills, and one bill is very NOT good.
*The philosophical exemption bill (H 7686) http://webserver.rilin.state.ri.us/BillText/BillText18/HouseText18/H7686.pdf
*The parental choice bill (H 7576) http://webserver.rilin.state.ri.us/BillText/BillText18/HouseText18/H7576.pdf This bill gives the ability to write a note for any non casual contact disease vs needing an exemption form.
* the informed consent bill (H 7704) http://webserver.rilin.state.ri.us/BillText/BillText18/HouseText18/H7704.pdf
*OPPOSE the database tracking bill (H 7882)
The tracking bill is extra concerning since most people are unaware that the RI Dept of Health tracks all children from birth in their KidsNet database since 1999. There is no opt out option, and it is not set up as opt in. This new bill will make that same database for all residents in RI, and it tracks much more then just vaccinations.
If you are unable to attend but still want to have your voice heard you can still submit testimony (see below) and email to firstname.lastname@example.org and the needed copies will be printed and submitted for you. You can also email the committee members (we suggest you do both) via www.endhpv2017.nohpvmandateri.com
The hearing will begin at the Rise of the House at about 4:30 PM, but we are asking supporters to arrive around 4PM to allow time to sign up to testify OR TO SIGN UP JUST IN SUPPORT of the bills, as you are not required to testify
BE SURE TO ADD #NOHPVmandateRI UNDER ORGANIZATION AFFILIATION WHEN SIGNING IN, this shows the committee the force of one message and group of citizens coming together is strong.
We suggest that you submit a page or two of relevant documentation such as your story of vaccine injury, government documents, science, etc. You’re testimony is much more powerful with written documentation and will be kept in the record if it is written down. Though only your personal opinion is still good too.
If you choose to submit written testimony:
~ You will need to make 38copies total – the house will need 23 copies, the senate will need 15, these will be handed into the clerk. (senate hearing TBT)
~ Include your name and bill number(s) at the top of your testimony
~ Please do not submit a verbatim script of your testimony. Use this as your opportunity to enrich your verbal statements with evidence, more information that you did not have time to say etc. You can submit written testimony only if you don’t wish to speak on the microphone.
~ Be brief and concise. You should keep testimony under two pages.
For those who are new to testifying would like more information see below:
~ If you can get to the hearing room early, you can sign in with the clerk in room 101 for the house committee (HEW) hearings
~ They are usually very strict about the 2 minute time limit when you testify. It may be helpful to write out a page of testimony in advance and time yourself to see if you can fit all of your points into 2 minutes. Be to the point.
Facebook Event Link ~ you can invite friends into the event which will give them a reminder via facebook notifications and share the event link on your personal wall.
Exciting News in RI in February. Legislation has been introduced in both the house and the senate in support of the mission to advocate for informed consent.
Hello Rhode Island health choice activists!
WE NEED YOUR HELP!
H.Res.327 outright denies Vaccine Injury and sets a dangerous precedent! It states: “there is no credible evidence to show that vaccines cause life-threatening or disabling diseases in healthy children or adults.” https://www.congress.gov/…/115th-…/house-resolution/327/text
Both of our Rhode Island Congressmen are Co-Sponsors of the proposed H.Res.327! Ask them to remove their names from this resolution!
Please follow this LINK to send a message to your congressman to oppose House Resolution 327 and tell them that vaccine injuries are REAL! It takes just 30 seconds to fill out this form, please do it now!
Our rights are being won and lost through legislation. If we are to protect health choice, we must educate our legislatures. Please also call your congressman and ask him to remove his name from this resolution. Be sure to remind him that manufacturing companies are shielded from liability for all vaccine injury https://www.congress.gov/bill/99th-congress/house-bill/5546 If this is your first time contacting a legislator and you would like a well referenced guide, walk them through the uploaded PDF request to withdraw names from H.Res.327. It is also much easier to talk to a congressman when you bring a friend!
Rep. Langevin, James R. [D-RI-2] – (401) 732-9400
Rep. Cicilline, David N. [D-RI-1] – 401-729-5600
Thank you for fighting for health choice!
Again, here is the link to send a message: http://capwiz.com/a-champ/issues/alert/?alertid=78793626&queueid=%5Bcapwiz:queue_id%5D
Today is a celebration of freedom as Independence Day. Unfortunately our congress and state house do more on an annual basis to roll back our freedoms, then any war we send our troops to fight over seas.
Today let’s celebrate the freedom we do have and remember that we still fight for rights, and like our cause to reverse the HPV mandate in RI, it is only possible with many numbers of citizens coming together to create change. Share information with family and friends as you gather together. Remind others they have a religious exemption option, and that they too can assist in fighting the mandate. Hashtag #NOHPVmandateRI is also our website www.NOHPVmandateRI.com to be easy to remember and pass along.
Thank you for everything you have done or might do or will do today. Without each person’s efforts big and small, we wouldn’t be able to accomplish our goal.
Enjoy the day and celebrations!!!
May 20th at the Providence Public Library, 10 am will be a screening of Episode 5 of the documentary “The Truth about Vaccines”
Episode 5 discusses the HPV vaccine and the Hep B vaccine. Multiple doctors discuss the studies and data associated, including Dr Toni Bark who traveled to RI in 2015 to speak at our event “Making Waves in the Ocean State”. Dr Bark was the director of the pediatric emergency department at a Chicago hospital.
Thanks to a wonderful volunteer named Courtney, we have the ability to present this screening. Call your legislator and invite them to attend also. Let them know you want them to see the data, and to support removing the mandate of the HPV vaccine.
Always here for you with questions or suggestions,
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