March 21st 2018

March 21st 2018

The House Health, Education, and Welfare committee in the RI statehouse will hear four bills that relate to the topic of informed consent and the HPV vaccine.

3 bills are good bills, and one bill is very NOT good.

*The philosophical exemption bill (H 7686)

*The parental choice bill (H 7576)

* the informed consent bill (H 7704)

*OPPOSE the database tracking bill (H 7882)
The tracking bill is extra concerning since most people are unaware that the RI Dept of Health tracks all children from birth in their KidsNet database since 1999. There is no opt out option, and it is not set up as opt in. This new bill will make that same database for all residents in RI, and it tracks much more then just vaccinations.

If you are unable to attend but still want to have your voice heard you can still submit testimony (see below) and email to and the needed copies will be printed and submitted for you. You can also email the committee members (we suggest you do both) via

The hearing will begin at the Rise of the House at about 4:30 PM, but we are asking supporters to arrive around 4PM to allow time to sign up to testify OR TO SIGN UP JUST IN SUPPORT of the bills, as you are not required to testify

BE SURE TO ADD #NOHPVmandateRI UNDER ORGANIZATION AFFILIATION WHEN SIGNING IN, this shows the committee the force of one message and group of citizens coming together is strong.

If you can’t make it by 4p, Comment in this event or msg The FB page to be signed in ahead of your arrival to be sure you are signed in with the clerk.

We suggest that you submit a page or two of relevant documentation such as your story of vaccine injury, government documents, science, etc. You’re testimony is much more powerful with written documentation and will be kept in the record if it is written down. Though only your personal opinion is still good too.

If you choose to submit written testimony:

~ You will need to make 38copies total – the house will need 23 copies, the senate will need 15, these will be handed into the clerk. (senate hearing TBT)
~ Include your name and bill number(s) at the top of your testimony
~ Please do not submit a verbatim script of your testimony. Use this as your opportunity to enrich your verbal statements with evidence, more information that you did not have time to say etc. You can submit written testimony only if you don’t wish to speak on the microphone.
~ Be brief and concise. You should keep testimony under two pages.

For those who are new to testifying would like more information see below:

10 tips to testifying before a committee

~ If you can get to the hearing room early, you can sign in with the clerk in room 101 for the house committee (HEW) hearings
~ They are usually very strict about the 2 minute time limit when you testify. It may be helpful to write out a page of testimony in advance and time yourself to see if you can fit all of your points into 2 minutes.  Be to the point.


Facebook Event Link ~ you can invite friends into the event which will give them a reminder via facebook notifications and share the event link on your personal wall.


Bills introduced in BOTH the house and the senate!

Bills introduced in BOTH the house and the senate!

Exciting News in RI in February. Legislation has been introduced in both the house and the senate in support of the mission to advocate for informed consent.

Senate Bill  S2405

Introduced By:
Senators Metts, Morgan, Paolino, Cote, and Archambault
This bill will allow for opt out by note vs exemption for the HPV vaccine by the wording of “non-casual contact disease transmitted by sexual contact”. Any parent or guardian can furnish the decision to the institution in writing. All consent forms and correspondence sent to parents and guardians about vaccinations shall affirmatively notify them of the option to opt out of participation in the vaccination program.
This bill is great for informed consent and we support that it is a move in the right direction. However, this bill does not remove HPV or any other non-casual contact disease future vaccine from not being included in the student vaccination list needed for school. It creates a philosophical exemption for that type of vaccine. We need you to help us send a message requesting that there be an amendment to the bill that changes wording to not having non-casual contact diseases on the list of vaccinations for school inclusion at all.
House Bills H7576 and H7686
Introduced By:
Representatives Roberts, Quattrocchi, Lancia, Price, and Chippendale
This bill is an exact duplicate of the senate bill discussed above.
Introduced By:
Representatives O`Grady, McKiernan, Price, Roberts, and Filippi
This bill will add the philosophical exemption option for the vaccination program back in for Rhode Island. You can state it is against your feelings of what is best for your family, and not choose to state it is against your religious beliefs.
At this time the bills have not been scheduled for a hearing yet.
TWO call to action Items-
1- Call the Governor and leave a msg if needed. Stating that you “are tired of waiting for her to take action. That the HPV vaccine was added to the school schedule by administrative order and should be removed by her administrative office immediately.”
2Send a prewritten email to the members of the house and senate committee in support of the legislation above. Don’t forget to sign the email with your name and address. You will need to send two emails. One to the house committee and one to the senate committee. CLICK HERE
Thank you for your support in this. It takes us all to make this impact together and you are an integral part of that process. Share this message with friends and family to be sure we overload the legislators with contact from the public.
Hearing is scheduled for March 21st 2018

Action Alert; Federal HR 327

Action Alert; Federal HR 327

Hello Rhode Island health choice activists!


********ACTION ALERT********

H.Res.327 outright denies Vaccine Injury and sets a dangerous precedent! It states: “there is no credible evidence to show that vaccines cause life-threatening or disabling diseases in healthy children or adults.”…/115th-…/house-resolution/327/text

Both of our Rhode Island Congressmen are Co-Sponsors of the proposed H.Res.327!  Ask them to remove their names from this resolution!
Please follow this LINK to send a message to your congressman to oppose House Resolution 327 and tell them that vaccine injuries are REAL!  It takes just 30 seconds to fill out this form, please do it now!

Our rights are being won and lost through legislation. If we are to protect health choice, we must educate our legislatures. Please also call your congressman and ask him to remove his name from this resolution.  Be sure to remind him that manufacturing companies are shielded from liability for all vaccine injury  If this is your first time contacting a legislator and you would like a well referenced guide, walk them through the uploaded PDF request to withdraw names from H.Res.327.  It is also much easier to talk to a congressman when you bring a friend!


Rep. Langevin, James R. [D-RI-2] – (401) 732-9400

Rep. Cicilline, David N. [D-RI-1] – 401-729-5600

Thank you for fighting for health choice!

Again, here is the link to send a message: 


Health Choice Rhode Island

Rhode Islanders against mandated HPV vaccinations


StateHouse Hearing TODAY

StateHouse Hearing TODAY



Two bills will be heard by the House Health, Education, and Welfare Committee this evening. H 5919 and H 5986 will be heard in Room 101 approx. 4:30p (pdf of Agenda)
Now it is time to show up and show the committee you are serious, you want these to pass. We created a Facebook event also so that it is even easier to invite others and share on social media to spread awareness.

If you work and are unable to attend. Call the HEW Committee Secretary. Lisa Cataldi  401.222.2296, Tell her to document your statement that you support these bills on the agenda this evening. ALSO email the whole committee with a simple click of a prewritten email to support this legislation. Please do both.

CLICK HERE to send prewritten email to committee members.

We sincerely thank you for supporting the efforts of getting these bills passed now and in the future.

#NOHPVmandateRI Team

 Facebook Discussion Group

The Gaspee Project · United States
You can also keep up with #NOHPVmandateRI on Twitter or Facebook or Instagram.


Legislative Alert April 5th

Legislative Alert April 5th



Two bills will be heard by the House Health, Education, and Welfare Committee this week. H 5919 and H 5986 will be heard in Room 101 approx. 4:30p April 5th Agenda
Now it is time to show up and show the committee you are serious, you want this passed. We created a Facebook event also so that it is even easier to invite others and share on social media to spread awareness.

If you work and are unable to attend. Email the HEW Committee Secretary. Lisa Cataldi  401.222.2296, please copy us on the email too

This statement or similar;
” I am writing in regards to bills H 5919 and H 5986. I fully support these bills and their support of parental rights for their children. I would like my name and statement documented and forwarded to the H.E.W. Committee Members, to support and pass these two pieces of legislation.

Thank you,
<Name> <address>”

We sincerely thank you for supporting the efforts of getting these bills passed now and in the future.

#NOHPVmandateRI Team

 Facebook Discussion Group




Rhode Islanders Against Mandated HPV Vaccinations has continued to rally support and to speak with legislators. Our efforts are paying off.

Sherry Roberts introduced bill H5919! Now four bills support the goals we have been working towards.

Sen. Raptakis sponsored bill S0047: This bill reverses the mandate of the HPV vaccine required for school, requires the RI Dept of Health to hold three public meetings prior to any future mandates, stipulates that mandates can only be made for disease transferrable in a classroom, and adds back the philosophical exemption option for vaccines.

Please come and sign in as support of the bill, you can also bring written testimony if you choose. Reply to this email and we will help you with any questions you may have.

Sen. Morgan sponsored bill S0489: This bill reverses the mandate of the HPV vaccine for school, takes away the ability to mandate any vaccines for disease not transmittable in a classroom, and requires three public meetings by RI DOH prior to any vaccine mandates.

Rep. Price sponsored bill H 5681: This bill give parents the ability to opt out of vaccination for being contrary to their beliefs not just religious belief.

The same year that it was added to the schedule of vaccines, the RI DOH received a grant for over $600,000 to market the HPV vaccine specifically. The mandate was not public knowledge until after it was already signed and added. Currently, the RI DOH is one of only two in the country that hold the power to mandate vaccinations without public input or legislation introduced for vote. The time is now to take a stand, to take the bureaucrat power away from the RI DOH, and to support the bills that respect the parent’s right to a private choice not tracked by the school department.

In this regard, we are asking you for your help. Please take action now to email your state representative and senator to support these important bills. Click on the link here to send a pre-written email instantly to your state senator and representative.



Share this link with friends and family to support the bills and spread awareness. Thank you for standing behind our efforts, we appreciate you, and we need your action now.


#NOHPVmandateRI Team



HPV Vaccines: Betrayal of the Public Trust?

HPV Vaccines: Betrayal of the Public Trust?

In 2013 multiple news articles reported 44% of American parents refusing Gardasil or Cervarix for their children. Between 2008 and 2010, the percentage of parents concerned about the safety of these two vaccines nearly quadrupled. As of 2010, only 32% of eligible girls were vaccinated against HPV. What is wrong with this picture?

Excerpts from national news sources, March 18-22, 2013:

  • USA Today The percentage of parents who say they won’t have their teen daughters vaccinated against the human papillomavirus increases, even though physicians increasingly recommend the vaccinations. Concerns about safety and side effects for the human papillomavirus (HPV) vaccine have increased among parents: 16% cited these fears as the main reason they did not have their daughters vaccinated in 2010, up from 5% in 2008…
  • Medpage Today Parents increasingly say they are worried about the safety of the human papillomavirus (HPV) vaccine and don’t intend to vaccinate their teen daughters… But there is no similar pattern for two other vaccines aimed at adolescents…
  • CNN Health Concerns of mothers and fathers about the safety of the HPV vaccine grew each year, from 4.5% in 2008 to 16.4% in 2010… The number of parents who said they would not vaccinate their children for HPV increased from 38.9% in 2008 to 43.9% in 2010. The main concern was safety.
  • CBS News One of the main reasons parents said they didn’t want their children vaccinated against HPV was because of safety concerns.
  • Bloomberg The number of girls who received either injection (Gardasil or Cervarix) rose to about one-third in 2010 from 16 percent in 2008…
  • FiercePharma A growing share of U.S. parents say they won’t vaccinate their daughters… And that leaves Merck’s Gardasil and GSK’s Cervarix with a shrinking market.
  • The New York Timessuggesting, the need for interventions beyond clinical recommendations like possibly ‘state and federally designed social marketing campaigns.’… Without brushing aside the need to address safety concerns, the increasing rates of HPV vaccine refusal suggest that widespread vaccination will require more than marketing campaigns. Medical professionals need to look for ways to tell a better story to parents and teens about HPV, vaccination and cancer. (emphasis added)

Taxpayer funded social marketing campaigns? Look for ways to ‘tell a better story’ to parents? Who are these people kidding? What happened to investigative journalism? What happened to fact-finding? What happened to fair and balanced journalism?

Has no one considered the possibility that the 43.9% of parents refusing this particular vaccine might have some valid concerns? When will people realize there is a huge difference between ‘increasingly concerned about the safety’ and ‘increasingly aware of the potential risks’? After all, this would not be the first time a prescription medication approved by the FDA as ‘safe and effective’ turned out to be nothing of the sort. Will HPV vaccines be next?

HPV vaccination programs worldwide are based on two assumptions. First, HPV vaccines will prevent cervical cancer and save lives. Second, HPV vaccines will pose no risk of serious side effects. Therefore, it would make sense to vaccinate as many pre-adolescent girls as possible to reduce the worldwide burden of cervical cancer. What happens if both of these assumptions are not based on factual evidence?[1]

Medical Consumers Want to Know:

  1. Since HPV vaccines have never been shown to prevent cervical cancer, why are they being promoted as cervical cancer vaccines?1
  2. Since the majority of HPV infections and a great proportion of abnormal lesions associated with cervical cancer development clear spontaneously without medical treatment, how can these factors be used as ‘end-points’ during clinical trials to reliably predict the number of cervical cancer cases that could be prevented by HPV vaccines?1
  3. How can the clinical trials make an accurate estimate of the risk associated with HPV-vaccines if they are methodologically biased to produce false negatives?1
  4. Why are HPV vaccines marketed so aggressively in developed countries, when 85.5% of annual cervical cancer cases and 87.9% of annual cervical cancer deaths occur in developing countries?[2]
  5. How can passive adverse event monitoring systems (voluntary reporting with no penalty for failure to report), such as those used by most vaccine surveillance systems world-wide, allow the medical regulatory agencies to make accurate estimates on the real frequency of HPV-vaccine related adverse reactions?
  6. How can accurate estimates of the real frequency of HPV-vaccine related adverse reactions be made if appropriate follow-up and thorough investigations of suspected vaccine reactions are not conducted?

The FDA granted Merck’s HPV vaccine, Gardasil, fast track approval in June of 2006, despite the fact that this HPV vaccine failed to meet the FDA criteria for fast track approval.[3] FDA approval of GSK’s HPV vaccine, Cervarix, followed shortly after in January 2007.

According to The New York Times, the CDC Advisory Committee on Immunization Practices recommended adding HPV vaccines to the immunization schedule in the U.S. despite the fact that 64% of the advisory committee members had potential conflicts of interest which were either never disclosed or left unresolved at the time they voted. 3% of the members actually voted on matters they had been barred from considering by ethics officers. News like this certainly does little to enhance the level of public trust.

Is it possible for the FDA to objectively monitor the safety and efficacy of HPV vaccines? One has to wonder since Congress tightened the rules on outside consulting after similarly undisclosed conflicts of interest were discovered within advisory committees at the FDA.

As if this is not enough, the United States Department of Health and Human Services, via the National Institutes of Health, Office of Technology Transfer receives royalties on each HPV vaccine sold worldwide. This happens because technologies used in the production of HPV vaccines were developed at NIH and subsequently patented by them. For three of the last five years, HPV vaccines based on recombinant papillomavirus capsid proteins have ranked #1 based on royalties from product sales.[4]

Marketing Gardasil to the public under these circumstances is a typical case of unconstrained government self-dealing. The major patent holder (National Cancer Institute/NCI), the regulator (FDA) and the vaccination policy maker (CDC) are all divisions of the Department of Health and Human Services (DHHS). These self-dealings typically benefit some administrators, not the government or tax payers.  For example, Dr. Julie Gerberding, as the Director of the CDC, approved the use of Gardasil for cervical cancer prevention as a public health policy is now the president of Merck’s Vaccine division promoting the sales of Gardasil.

How much revenue is generated for the NIH from international sales of HPV vaccines? In November 2010, Dr. Eric Suba submitted a Freedom of Information Request to the Office of Government Information Services to discover the amount. It seems the financial details of the partnership between the NIH, Merck and GlaxoSmithKline are exempt from disclosure. (Read the response received here.) Apparently, transparency in government does not apply to the top 20 revenue producing patent(s) developed at taxpayer expense. Why is the public not allowed to share in celebrating the success of products they financed?

Three Strikes for Gardasil?

  1. September 2011: Recombinant HPV DNA L1 gene DNA fragments, possibly attached to the aluminum adjuvant, were discovered in 100% of Gardasil samples tested. There was no subsequent investigation. The FDA simply declared the ‘expected’ presence of residual DNA is not a safety factor. No documentation was provided. The fact that HPV vaccines were approved by governments worldwide based on manufacturers’ assertions that the vaccines contained ‘no viral DNA’ was completely ignored.[5], [6] The possibility of recombinant HPV DNA fragments being attached to aluminum adjuvant particles was also ignored.
  2. August 2012: One of the antigens used in Gardasil was discovered in central nervous system samples from two girls who died after being vaccinated with Gardasil. No cause of death was identified upon autopsy in either case.[7] HPV-16 L1 gene DNA fragments of vaccine origin apparently attached to aluminum adjuvant particles were also discovered in post mortem blood and spleen samples of a girl who died 6 months after Gardasil injections.[8], [9]
  3. February 2013: It was discovered that the naked HPV 16 L1 gene fragments bound to aluminum particles by ligand exchange in Gardasil have acquired a non-B conformation. This conformational change may have stabilized the HPV 16 gene fragments in Gardasil preventing their normal enzymatic degradation in vaccine recipients.[10], [11] Non-B DNA conformations and their relationship to diseases has been studied since the 1960’s. Based on current scientific knowledge, the human genetic consequences of these non-B DNA structures are approximately 20 neurological diseases, approximately 50 genomic disorders and several psychiatric diseases.[12], [13] The impact of injected foreign non-B DNA on human health is totally unknown. 

Why have none of these discoveries sparked a single investigation in any country? Why is no one concerned when genetically modified viral DNA fragments are found in vaccines that are reported to have no viral DNA? Why is no one worried about those viral DNA fragments being attached to aluminum (a known toxin) possibly creating a new chemical compound of unknown toxicity? Why are no red flags raised when those viral DNA fragments attached to aluminum acquire a non-B conformation – something known to be associated with multiple debilitating diseases? Anyone with an ounce of common sense should demand to know why those charged with approval, recommendation and safety monitoring of these vaccines appear to be utterly unconcerned about the future health implications of any one of these discoveries, much less all three of them.

What kind of ‘expert’ advice is being given to YOUR government health officials?

Israel’s Advisory Committee on Infectious Diseases and Inoculations held a teleconference on 30 January 2013, to discuss the proposed introduction of HPV vaccines into the country’s school inoculation program among other issues. The official transcript of that meeting, dated 11 February 2013, provides some interesting insights for medical consumers who question HPV vaccine safety.

Ron Dagan, MD, is Professor of Pediatrics and Infectious Diseases at the Ben-Gurion University of the Negev in Beer-Sheva, Israel, and Director of the Pediatric Infectious Disease Unit at the Soroka University Medical Center, also in Beer-Sheva. An active researcher and international lecturer, Dr. Dagan’s work focuses on new conjugate vaccines. His expert advice to Israel’s Advisory Committee regarding potential HPV vaccine implementation is as follows (translation provided-emphasis added):

We are dealing with injections, some of which given in 3 [separate] doses, which are delivered to teenage girls. Many side effects are to be expected. During the week following the vaccine delivery of the injections many serious events which are not related/linked to the vaccination are expected: fainting, deaths and convulsions/fits. This needs to be taken into account. Even if it is not rational, if these events happen in class they may damage the general perception/status of the vaccinations. This is happening all over the world all the time. We have already dealt with a similar issue in relation to the delivery of MMR with TD and Polio and we have accepted the nurse’s proposal to split these between grades 1 and 2. The nurses are suitable to make recommendations to the committee in relation to this issue. In relation to the side effects, we need to be prepared in advance and not simply react after the fact. I propose we consult with the English representatives as to how they’ve gone about this. We must prepare for the delivery of the new vaccine. The nurses need to know they are going about this in the way they are most comfortable with (/have the most control over/familiarity with).

If this is an example of the expert advice vaccination programs are based on, it’s no wonder medical consumers are questioning HPV vaccine safety, efficacy and need. Many side effects are to be expected? Fainting, deaths, convulsions and fits occurring during the week following vaccination – yet not related to the vaccine? Preparing in advance for side effects? Consulting with other countries to see how they handled the problem? Are countries around the world being offered similar expert advice?

So, what will it take to solve the HPV vaccine uptake problem?

Parental concerns about HPV vaccine safety are not going to go away in response to social media campaigns. Teaching medical professionals to ‘tell a better story’ is not going to make parents change their mind about Gardasil, Cervarix, or any future HPV vaccine. Platitudes and unsubstantiated reassurances are no longer sufficient.

The time has come for government health authorities to make HPV vaccine manufacturers prove their claims or pull their products from the market. Medical consumers want scientifically proven facts – Safe, Affordable, Necessary and Effective – nothing less is acceptable.

The above article is from and was written in 2013. This information is still valid and a reminder is in order for the current fight for our rights around the country and in RI about the HPV vaccine. #InformedConsent is essential and very important points are not being disclosed.

Since this article was published, last month there was a change in the dosing scheduled suggestions by the CDC. Where children under age 15 only need to receive two doses vs three doses. More specific details also apply.

Now on Nov 18th the CDC will hold a training to teach health care workers how to encourage the HPV vaccine and how to understand the new dosing recommendations by the CDC from Oct 2016.

Share this blog post with your legislator and schedule a time to sit down and speak with them.