Bad senate bill has arrived

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There was a terrific showing of attendance on Wed two weeks ago for the hearing of H5541 against the bad database bill. Thank you to everyone who took the time to show up and wrote to the committee.

The companion Bad Database bill has dropped on the Senate side S676, sponsored by senator Crowley without any co sponsors listed.

Now be sure to let your representative & senator of your district know you do not want them to support these bills. Bring it to their attention. We have access to software for A SHORT TIME that lets you enter your address and send a direct msg to your rep. Do it NOW and then share this message with others too. We need to show that numbers are strong and we do not want this bill to pass. After you send the pre written email, it will give you the phone numbers so you can call and write down for future reference. Please commit to asking two friends to also use this tool to write in opposition of these bills.

Email the Health committee to oppose S 676 for the senate also. We will let you know when a hearing date has been scheduled.

Two emails will take approx 3min or less of your time. Later could become never, please email Now.

 

Additional piece of info that you may not have seen in our previous notices —

HIPAA laws exempt agencies such as a health department from following HIPAA guidelines with data they have obtained. In other words, once the DOH has the data in the database they are exempt from HIPAA laws.

 

Act NOW to stop this database from happening in RI.

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Follow us on social media too, and use hashtag #NOHPVmandateRI

Recent article about the bill

 

Thank you for all your support and continuing to stand for your rights and advocate for informed consent.

Aimee Gardiner

Director, Rhode Islanders against HPV vaccinations

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WE REACHED THE GOAL TO SEND THE BOOK “HPV VACCINE ON TRIAL” TO 26 LEGISLATORS. Thank you to everyone who made this possible.

Database Tracking Without Your Consent

Database Tracking Without Your Consent

Database Tracking Without Your Consent Should Worry Moms

Currently, the Rhode Island Department of Health (RIDOH) has a database, called Kidsnet, and your child’s information is there forever without your consent. This database has all RI resident minor children enrolled in it, and it’s likely you’ve never heard of it. Why is that?

First, it is a robust database tracking things well beyond what you may want tracked, and leave you wondering why such a database needs to be held within the RIDOH.

For instance, it records who lives in the home with the child, and it also tracks blood specimen from birth. Since when is a signature or voluntary consent not needed for DNA data storage? It tracks if you’ve ever enrolled in programs like WIC or Early Intervention.

Mothers may be especially unimpressed to find out that they are tracking if the child was born vaginally, or by c-section. A mother’s level of education, and whether or not the mother was married at time of time of birth are fields in this database.

Is this the kind of data tracking that we want to happen without our consent or approval?

The icing on the cake to this Kidsnet is you cannot delete the file. RIDOH will not remove it regardless of your request. You may only block your child’s file— so that only the RIDOH can see it, and not other signed in accounts.

RIDOH will continue to track and look at your file, while your objections fall on deaf ears. Want to block your file? Well, they go out of their way to make that inconvenient. You need to call the RIDOH then have your doctor witness you signing a form in their office.

We are in the 21st century, using complex databases tracking data without consent, and yet you can not use a online portal or notarized letter to request that our children’s information is blocked. According to the RIDOH, we must call then wait to sign at doctors office to block our child’s data. An electronic file that we should be able to have completely removed and deleted from the system.

Legislation H5541 has been introduced this year, and has a hearing date scheduled for Mar 13th at Rhode Island State House. This legislation expands the Kidsnet database to all adults in RI as part of the National Adult Immunization Plan.

It renames the database Rhode Island Child and Adult Immunization Registry (RICAIR). This database will be set to automatically enroll all adults residing in the Ocean State. This expansion of data mining without consent will now be for every Rhode Island resident no matter the age. When RI has an inflated budget that over spends beyond our revenue, why are we even considering putting more tax dollars to bureaucratic control for something we don’t have an actual need for especially considering the recent UHIP disaster.

National Adult Immunization Plan is an actual plan from HHS, and Goal 3 is increase community demand for adult vaccinations. Goal 4  Foster innovation in adult vaccine development and vaccination-related technologies. This database bill falls into that plan. Do you feel you need multiple more vaccines as an adult? Just a few months ago the FDA approved the HPV vaccine to be expanded to age 45, do you want to be bugged about getting a HPV vaccine? There seems to be a pattern with RI Dept of Health, moving forward with choices that are dollar driven and not driven by a need or want of the RI residents. Rhode Island does not have epidemics for anything a vaccine is available for.

If you don’t want to be automatically enrolled in a government database that you can not delete your file from then please oppose bill H5541. Please attend the hearing at 4:00pm on Wednesday the 13th at the Rhode Island State House. Citizens are encouraged to testify in person in room 101 or submit written testimony to the committee. Secretary of the H.E.W. committee can be contacted via lcataldi@rilegislature.gov

.

Aimee Gardiner

Aimee@NOHPVmandateRI.com

Instagram & Twitter @MyRightsRI

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http://www.health.ri.gov/publications/metadata/KIDSNETDataDictionary.pdf

https://www.hhs.gov/sites/default/files/nvpo/national-adult-immunization-plan/naip-path-to-implementation.pdf

https://nohpvmandateri.files.wordpress.com/2019/02/h5541.pdf

http://www.health.ri.gov/programs/kidsnet/about/confidentiality/#whatparentscando


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H5541 Hearing / Talking Points

H5541 Hearing / Talking Points

 

WEDNESDAY MARCH 13TH 4PM the hearing for H 5541 has been scheduled for Rm 101.

This is the BAD DATABASE BILL that will automatically enroll every RI resident.

We need as many people as possible to show up to this hearing to oppose this bill. Last year it passed on the senate side. This year it is in committee on the house side early in the legislative session. PLEASE attend and bring a friend or two with you. We created a Facebook event also so it is easy to share and invite others on social media. https://www.facebook.com/events/2214858705392691/

When speaking at a legislative hearing you are given 2 minutes to say your testimony. You may also bring written testimony only and not speak if you would prefer. Please bring 23 copies of your statement with H5541 at the top, and your name- address – and phone printed clearly on the documents. The clerk will distribute them to the committee. If you are not able to make it and want us to submit your written testimony on your behalf – please email it to aimee@nohpvmandateri.com.

Talking Points to consider;

~ RI Dept of Health is exempt from HIPAA regulations. No privacy protection.

~ The database itself plus the personnel salaries to maintain it will inflate our already very large RI budget. When we can barely pay for our state expenses, why are we adding to the tally when there is no actual need for it.

~ Automatically opting residents into a database is unethical. Currently this already happens with the child database in RI, and has no option to opt out of it. This should never be supported in this kind of way. If a database was to even exist, each resident should need to sign up that they wish to participate, and voluntarily take part in it.

~ You want the right to make private and non tracked decisions regarding HPV vaccines for your preteens, if they start tracking adults, do you want them bothering you next with getting the HPV vaccine? It was recently approved for through age 45 by the FDA

~ The language for “opt out” in the bill is not defined, and does not guarantee your file will be deleted upon opting out. The current database for kids does NOT allow the file to be deleted.

~ It would continue forward with insurers and pharmacists on the vaccine recommendation committee, without any citizen parent advocates or even immunologists, on the panel.

~ The last two weeks there were topic hearings in congress about vaccination and removing exemptions for all vaccines (this would mean no longer being able to decide which ones you are okay with or not). Tracking you as an adult also means being able to try to later make adults comply to vaccinations without exemption options, and they will have a database to target you from.

~ The language of the bill allows for no restrictions of what gets tracked. They can add any fields in the future, currently they track if a mother was married when child was born – what does that have to do with health? & who are they to decide this is okay to track?

 

Petition located at Database.nohpvmandateri.com

You can use and share www.2019.nohpvmandateri.com for writing prewritten emails to the committee. These are short and generic and we encourage you to add to them.

If the mandate of the HPV vaccine has shown us anything from RI Dept of Health, it is that they are not focusing on public health they are focusing on some kind of plan with a goal that is tied to dollars. In 2014 when the HPV vaccine was added to the schedule for 7th graders, the RI Dept of Health received a grant for over $600,000 to market the HPV vaccine. That’s over a half a million tax dollars spent in just this state to market a vaccine that Merck profits from.

 

Take action today.

See our previous message about multiple RI bills

 

Thank you for supporting the efforts of Rhode Islanders against mandated HPV vaccinations, you are appreciated.

 

Please SHARE THIS MESSAGE with others to help us reach out and get Rhode Islanders to know about this piece of legislation.

Follow us on social media too, and use hashtag #NOHPVmandateRI

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Donate Today and help us accomplish the mission!

March 28th 2018 ~

March 28th 2018 ~

The House Health, Education, and Welfare committee in the RI statehouse will hear four bills that relate to the topic of informed consent and the HPV vaccine.

3 bills are good bills, and one bill is very NOT good.

*The philosophical exemption bill (H 7686) http://webserver.rilin.state.ri.us/BillText/BillText18/HouseText18/H7686.pdf

*The parental choice bill (H 7576) http://webserver.rilin.state.ri.us/BillText/BillText18/HouseText18/H7576.pdf    This bill gives the ability to write a note for any non casual contact disease vs needing an exemption form.

* the informed consent bill (H 7704) http://webserver.rilin.state.ri.us/BillText/BillText18/HouseText18/H7704.pdf

*OPPOSE the database tracking bill (H 7882)
http://webserver.rilin.state.ri.us/BillText/BillText18/HouseText18/H7882.pdf
The tracking bill is extra concerning since most people are unaware that the RI Dept of Health tracks all children from birth in their KidsNet database since 1999. There is no opt out option, and it is not set up as opt in. This new bill will make that same database for all residents in RI, and it tracks much more then just vaccinations.

If you are unable to attend but still want to have your voice heard you can still submit testimony (see below) and email to admin@nohpvmandateri.com and the needed copies will be printed and submitted for you. You can also email the committee members (we suggest you do both) via www.endhpv2017.nohpvmandateri.com

The hearing will begin at the Rise of the House at about 4:30 PM, but we are asking supporters to arrive around 4PM to allow time to sign up to testify OR TO SIGN UP JUST IN SUPPORT of the bills, as you are not required to testify

BE SURE TO ADD #NOHPVmandateRI UNDER ORGANIZATION AFFILIATION WHEN SIGNING IN, this shows the committee the force of one message and group of citizens coming together is strong.

If you can’t make it by 4p, Comment in this event or msg The FB page m.facebook.com/riagainsthpvmandate to be signed in ahead of your arrival to be sure you are signed in with the clerk.

We suggest that you submit a page or two of relevant documentation such as your story of vaccine injury, government documents, science, etc. You’re testimony is much more powerful with written documentation and will be kept in the record if it is written down. Though only your personal opinion is still good too.

If you choose to submit written testimony:

~ You will need to make 38copies total – the house will need 23 copies, the senate will need 15, these will be handed into the clerk. (senate hearing TBT)
~ Include your name and bill number(s) at the top of your testimony
~ Please do not submit a verbatim script of your testimony. Use this as your opportunity to enrich your verbal statements with evidence, more information that you did not have time to say etc. You can submit written testimony only if you don’t wish to speak on the microphone.
~ Be brief and concise. You should keep testimony under two pages.

For those who are new to testifying would like more information see below:

10 tips to testifying before a committee

~ If you can get to the hearing room early, you can sign in with the clerk in room 101 for the house committee (HEW) hearings
~ They are usually very strict about the 2 minute time limit when you testify. It may be helpful to write out a page of testimony in advance and time yourself to see if you can fit all of your points into 2 minutes.  Be to the point.

 

Facebook Event Link ~ you can invite friends into the event which will give them a reminder via facebook notifications and share the event link on your personal wall.