Fight against Medical Tracking in RI

Fight against Medical Tracking in RI

S676 sub A and H5541 sub A are coming close to being passed in RI statehouse. Keep fighting. It’s not over until its over.

Take a multi step action approach TODAY and throughout this week

CALL the Governor office to Oppose these bills. You won’t get her herself. Leave a msg with staff to oppose S676 sub A and H5541 sub A, and refuse to sign into law if they pass the floor vote. That you want our governor to respect our rights to privacy and informed consent. She should only support OPT IN for such an invasive database.

Calling Governor Phone: (401).222.2080

Call Senate President and Speaker of the House that you oppose the medical tracking database and they should also.

**Speaker Nicholas Matiello: 401-222-2466
**Senate President Ruggerio 401-222-6655

Call Senate HHS Committee Members to Vote NO on S676 sub A on Tues June 18th

Chairperson Joshua Miller 401-276-5507
Vice Chairperson Gayle Goldin 401- 276-5568
Senator Elizabeth Crowley 401-725-8526
Senator Thomas Paolino 401-749-6120
Senator Adam J. Satchell 401-615-5170
Senator James C. Sheehan 401-276-5567
Senator Bridget Valverde 401-379-0082
Senator Donna M. Nesselbush 401-728-3244
Senator Valerie Lawson 401-316-5666

Points on these bills;

RIDOH proposes an opt-out system that would require us to opt out, REPEATEDLY. We may be enrolled whenever we see a new doctor. There are no checks and balances of power. The same agency that tracks will also define the opt-out process those who wished to opt out would receive no written confirmation that they had been removed. RIDOH would also NOT be compelled to expunge any information collected while we were automatically enrolled.
This bill violates privacy and informed consent and proposes to legally data mine Rhode Islanders. New York, New Jersey and New Hampshire all have opt-in databases. We should too.

The Rhode Island Department of Health has introduce House Bill 5541 via Representative McNamara and Senate Bill 676 via Senator Crowley, to track the medical data of every person in Rhode Island. According to lines 9 & 10, RICAIR (tracking database) will collect, “data elements nationally endorsed by the Centers for Disease Control and Prevention” Meanwhile, CDC endorses ALL data elements that a tracking database collects, “This list does not include all data elements external information systems such as EHRs, vital records, practice management or billing systems are expected to send to an IIS. The list may not include all data elements an IIS produces, stores or sends. Data elements may be derived and architectural solution may differ among IIS.”  – Note the bold wording below the spreadsheet here from the CDC https://www.cdc.gov/vaccines/programs/iis/core-data-elements/CDC-Endorsed-Data-Element-Definitions.xlsx

RI ACLU has opposed this legislation see their statement here http://riaclu.org/images/uploads/H_5541_Immunization_Registry.pdf

 

Send two emails– one to whole house of representatives – one to whole senate.

Use info above to compose your email. You may also keep it to one paragraph like suggestion above for calling Governor.

Example Signature

Aimee Gardiner, RI Parent, Health Advocate, 4017410386

 

Copy and Paste list for House Representatives – BCC whole house in one email

Subject; OPPOSE H5541 subA floor vote on Medical Tracking Database

rep-blazejewski@rilegislature.gov
rep-walsh@rilegislature.gov
rep-kislak@rilegislature.gov
rep-Ranglin-Vassell@rilegislature.gov
rep-hull@rilegislature.gov
rep-mckiernan@rilegislature.gov
rep-lombardi@rilegislature.gov
rep-williams@rilegislature.gov
rep-slater@rilegislature.gov
rep-diaz@rilegislature.gov
rep-almeida@rilegislature.gov
rep-mendez@rilegislature.gov
rep-lima@rilegislature.gov
rep-mattiello@rilegislature.gov
rep-millea@rilegislature.gov
rep-jacquard@rilegislature.gov
rep-handy@rilegislature.gov
rep-mcnamara@rilegislature.gov
rep-bennett@rilegislature.gov
rep-Vella-Wilkinson@rilegislature.gov
rep-solomon@rilegislature.gov
rep-shekarchi@rilegislature.gov
rep-Shanley@rilegislature.gov
rep-noret@rilegislature.gov
rep-jackson@rilegislature.gov
rep-serpa@rilegislature.gov
rep-nardone@rilegislature.gov
rep-roberts@rilegislature.gov
rep-caldwell@rilegislature.gov
rep-Casimiro@rilegislature.gov
rep-craven@rilegislature.gov
rep-mcentee@rilegislature.gov
rep-tanzi@rilegislature.gov
rep-fogarty@rilegislature.gov
rep-filippi@rilegislature.gov
rep-azzinaro@rilegislature.gov
rep-kennedy@rilegislature.gov
rep-Price@rilegislature.gov
rep-chippendale@rilegislature.gov
rep-quattrocchi@rilegislature.gov
rep-ucci@rilegislature.gov
rep-fellela@rilegislature.gov
rep-costantino@rilegislature.gov
rep-ackerman@rilegislature.gov
rep-lyle@rilegislature.gov
rep-place@rilegislature.gov
rep-newberry@rilegislature.gov
rep-morin@rilegislature.gov
rep-casey@rilegislature.gov
rep-phillips@rilegislature.gov
rep-Marszalkowski@rilegislature.gov
rep-hawkins@rilegislature.gov
rep-obrien@rilegislature.gov
rep-corvese@rilegislature.gov
rep-maldonado@rilegislature.gov
rep-mclaughlin@rilegislature.gov
rep-tobon@rilegislature.gov
rep-barros@rilegislature.gov
rep-alzate@rilegislature.gov
rep-johnston@rilegislature.gov
rep-messier@rilegislature.gov
rep-kazarian@rilegislature.gov
rep-serodio@rilegislature.gov
rep-amore@rilegislature.gov
rep-cassar@rilegislature.gov
rep-Knight@rilegislature.gov
rep-marshall@rilegislature.gov
rep-donovan@rilegislature.gov
rep-edwards@rilegislature.gov
rep-canario@rilegislature.gov
rep-cortvriend@rilegislature.gov
rep-abney@rilegislature.gov
rep-ruggiero@rilegislature.gov
rep-carson@rilegislature.gov
admin@nohpvmandateri.com
governor@governor.ri.gov

 

Copy and Paste List for Senate – BCC an email to full senate

Subject; OPPOSE S676 subA floor vote on Medical Tracking Database

governor@governor.ri.gov
admin@nohpvmandateri.com
sen-Quezada@rilegislature.gov
sen-goldin@rilegislature.gov
sen-ruggerio@rilegislature.gov
sen-bell@rilegislature.gov
sen-metts@rilegislature.gov
sen-ciccone@rilegislature.gov
sen-cano@rilegislature.gov
sen-satchell@rilegislature.gov
sen-felag@rilegislature.gov
sen-Seveney@rilegislature.gov
sen-dipalma@rilegislature.gov
sen-euer@rilegislature.gov
sen-lawson@rilegislature.gov
sen-nesselbush@rilegislature.gov
sen-crowley@rilegislature.gov
sen-Paolino@rilegislature.gov
sen-conley@rilegislature.gov
sen-pearson@rilegislature.gov
sen-picard@rilegislature.gov
sen-rogers@rilegislature.gov
sen-archambault@rilegislature.gov
sen-delacruz@rilegislature.gov
sen-murray@rilegislature.gov
sen-lombardo@rilegislature.gov
sen-lombardi@rilegislature.gov
sen-gallo@rilegislature.gov
sen-miller@rilegislature.gov
sen-mccaffrey@rilegislature.gov
sen-mckenney@rilegislature.gov
sen-lynchprata@rilegislature.gov
sen-coyne@rilegislature.gov
sen-raptakis@rilegislature.gov
sen-morgan@rilegislature.gov
sen-valverde@rilegislature.gov
sen-sheehan@rilegislature.gov
sen-sosnowski@rilegislature.gov
sen-algiere@rilegislature.gov
sen-goodwin@rilegislature.gov

 

You can still sign the petition against this database being formed in RI

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URGENT ACTION against #BadDatabase bills

URGENT ACTION against #BadDatabase bills

The Bad Database Bills have made it to the calendar of June 12th and 13th ~ OPPOSE H5541 & S676
THIS IS VERY BAD, AND INDICATES THEY COULD PASS IF LOTS OF ACTION IS NOT DONE RIGHT AWAY.

ACTION ITEMS
Please complete ASAP

1. CALL each one of the committee members Plus the Speaker and the Senate President to OPPOSE these bills. (see list below)

2. Sign the petition Database.nohpvmandateri.com ~ this will be printed and distributed to the committee members.

3. Invite as many RI residents in the FB event to be informed as you can, and/or share this blog link. Numbers are the only way we can kill this.

See ACLU testimony against this legislation here http://riaclu.org/images/uploads/H_5541_Immunization_Registry.pdf

Below you will find 26 phone numbers to call to oppose these bills. That may seem like a lot, with how much these bills infringe on our rights and the 4th amendment, we urge you to call all of them. If you truly feel that you can not. Please call the ones we have starred to urge them to OPPOSE the bills.

Sample message “I am calling to urge you to strongly oppose database tracking bills that auto enroll RI residents. RIDOH is exempt from HIPAA laws, I want you to protect my privacy and right to informed consent. Oppose bill [ state which bill ] legislation that infringes on our rights.”

OPPOSE H5541 & S676

Senate HHS Committee Members
OPPOSE S676
**Chairperson Joshua Miller 401-276-5507
**Vice Chairperson Gayle Goldin 401- 276-5568
**Senator Elizabeth Crowley 401-725-8526
Senator Thomas Paolino 401-749-6120
Senator Adam J. Satchell 401-615-5170
Senator James C. Sheehan 401-276-5567
Senator Bridget Valverde 401-379-0082
Senator Donna M. Nesselbush 401-728-3244
**Senator Valerie Lawson 401-316-5666

House HEW Committee Members
OPPOSE H5541
**Chairman Joseph M. McNamara H: 401-941-8319 W: 222-8319
**Vice Chairman Dennis M. Cannario H: 401-683-4926 W:401-222-6595
2nd Chairman Robert D. Phillips H: 401-762-2010 W: 401-222-2466
Representative Mia Ackerman H: 401-658-0981 W: 401-222-2466
Representative Karen Alzate H: 401-663-5600 W:401-222-2466
Representative Greg Amore H: 401-339-9378 W: 401-339-9378
Representative Samuel A. Azzinaro H: 401-596-1434 W: 401-222-2933
**Representative David A. Bennett H: 401-480-4647 W: 401-222-2466
Representative Chris R. Blazejewski H:401-484-8814 W:401-484-8814
Representative Julie A. Casimiro: H: 401-474-7961 W: 401-474-7961
Representative Susan R. Donavan H: 401-253-7837 W: 401-222-2466
Representative John W. Lyle,Jr H: 401-723-6104 W: 401-222-2466
Representative Shelby Maldonado H: 401-340-8833 W: 401-222-2466
Representative Sherry Roberts H: 401-680-0128 W: 401-222-2466
Representative Jose R Serodio H: 401-340-9150 W: 401-222-2466
**Representative June Speakman: H: 401-258-1134 W: 401-222-2466

**Speaker Nicholas Matiello: W: 401-222-2466
**Senate President Ruggerio 401-222-6655

Act Today against S676

Act Today against S676

THURSDAY MAY 9TH 4:30P is the hearing for S 676 has been scheduled in the senate lounge. Only three bills are currently on the agenda for this evening. Show at close to 4:30 as you are able – you can text Aimee 4017410386 to ask about status etc if you are running late.

This is the BAD DATABASE BILL that will automatically enroll every RI resident.

Summary of medical tracking bill S 676:
The Rhode Island Department of Health has introduce Senate Bill 676 via Senator Crowley, to track the medical data of every person in Rhode Island. According to lines 9 & 10, RICAIR (Rhode Island Child and Adult Immunization Registry) will collect, “data elements nationally endorsed by the Centers for Disease Control and Prevention” Meanwhile, CDC endorses ALL data elements that a tracking database collects, “This list does not include all data elements external information systems such as EHRs, vital records, practice management or billing systems are expected to send to an IIS. The list may not include all data elements an IIS produces, stores or sends. Data elements may be derived and architectural solution may differ among IIS.”

We need as many people as possible to show up to this hearing to oppose this bill. Last year it passed on the senate side. PLEASE attend and bring a friend or two with you. We created a Facebook event also so it is easy to share and invite others on social media. https://www.facebook.com/events/423331301562642/

Last year, the ACLU strongly opposed this weak and ineffective opt-out data collection system, citing 5 compelling reasons. Below is a particularly relevant example.
“Finally, and sadly, we have no reason to believe these fears are beyond the pale. In the recent past, the DOH has shown that it does not consider patient confidentiality a priority in its mission. Last year, Committee members will recall, the DOH supported legislation sponsored on behalf of the Attorney General to give law enforcement access to the Department’s prescription drug monitoring database without a warrant. DOH did so only a few years after it got a bill passed to vastly expand the prescription information in that database by agreeing that police would not be able to gain access to the information without a warrant. In the past year alone, the Department has proposed regulations to expand third party access to two other large agency databases with confidential patient information – the health information exchange and the allpayer claims database. There is simply no reason to trust the Department to put the confidentiality interests of patients first once this information is included in a DOH database.”

ARE YOU ALL IN AGAINST THIS INTRUSION OF YOUR MEDICAL PRIVACY AND RIGHTS TO YOUR PERSONAL DATA?! We created a multi step list for those ready to go all in for the fight for your rights. CLICK HERE for that list.

When speaking at a legislative hearing you are given 2 minutes to say your testimony. You may also bring written testimony only and not speak if you would prefer. Please bring 15 copies of your statement with S676 at the top, and your name- email or phone- printed clearly on the documents. The clerk will distribute them to the committee. If you are not able to make it and want us to submit your written testimony on your behalf – please email it to aimee@nohpvmandateri.com.

Talking Points to consider;

~ No limit to data tracking as stated in summary paragraph above.

~ Automatically opting residents into a database is unethical. Currently this already happens with the child database in RI, and has no option to opt out of it. This should never be supported in this kind of way. If a database was to even exist, each resident should need to sign up that they wish to participate, and voluntarily take part in it.

~ The Dept of Health was granted a prescription database with the statement that police officers would not have access to it without a warrant. They later advocated in favor of and a bill passed to allow that very database to be accessible to police in RI without a warrant.

~ The DOH is exempt from HIPAA laws. Once they have the data there is no privacy protection in place.

~ The language for “opt out” of the bill is not defined, and does not guarantee your file will be deleted upon opting out.  The current database for kids has a multi step inconvenient process that does not allow your file to be deleted.

~ The database itself plus the personnel salaries to maintain it will inflate our already very large RI budget. When we can barely pay for our state expenses, why are we adding to the tally when there is no actual need for it.

~ You want the right to make private and non tracked decisions regarding HPV vaccines for your preteens, if they start tracking adults, do you want them bothering you next with getting the HPV vaccine? It was recently approved for through age 45 by the FDA

 

==== Call Your senator ( can find who that is vote.sos.ri.gov) and tell them to oppose this bill that intrudes on your personal data and does not give any form of privacy guarantee. That you do not consent to the DOH having the ability to track any medical data field they decide. ====

 

We have also created a petition that we will print and bring with us to the committee hearing. You can sign and share the petition via database.NOHPVmandateRI.com

The Dept of Health has shown RI on more then one occasion that they should not be trusted. Stop the database tracking bill!

Take action today.

 

 

Thank you for supporting the efforts of Rhode Islanders against mandated HPV vaccinations, you are appreciated.

 

Please SHARE THIS MESSAGE with others to help us reach out to as many people as we all can together to be informed about this bill.

 

Follow us on social media too, and use hashtag #NOHPVmandateRI

B&W_Facebook_icontwitterlogoinstagram

 

 

 

 

Donate Today! Help us accomplish the mission

All In Action Items

All In Action Items

This Action Item list is specific to the database tracking bills H5541 & S676

  • Mark your calendar for May 9th at 4:30p to attend hearing on S676 in senate lounge. Personally ask two friends/family members to attend also.
    • Did you already email the Senate Health and Human Services committee?    Yes?! Great.   Either way – Email the whole senate with the emails list below place the list the in BCC field (should be able to copy and paste) Last year it passed the senate floor so fast. We are switching up strategy and having the whole senate be informed on why to oppose this bill. We want to be sure they are aware it is coming and the public is not in favor of it. See some talking points and details here

Mail to full senate     This link will email whole senate but will not place emails in the BCC field, we suggest using the BCC field. Here is the list of emails that you can copy and paste if that link also doesn’t work for you  – scroll past list to see other action items –

sen-Quezada@rilegislature.gov

sen-goldin@rilegislature.gov

sen-ruggerio@rilegislature.gov

sen-bell@rilegislature.gov

sen-metts@rilegislature.gov

sen-ciccone@rilegislature.gov

sen-cano@rilegislature.gov

sen-satchell@rilegislature.gov

sen-felag@rilegislature.gov

sen-Seveney@rilegislature.gov

sen-dipalma@rilegislature.gov

sen-euer@rilegislature.gov

sen-lawson@rilegislature.gov

sen-nesselbush@rilegislature.gov

sen-crowley@rilegislature.gov

sen-Paolino@rilegislature.gov

sen-conley@rilegislature.gov

sen-pearson@rilegislature.gov

sen-picard@rilegislature.gov

sen-rogers@rilegislature.gov

sen-archambault@rilegislature.gov

sen-delacruz@rilegislature.gov

sen-murray@rilegislature.gov

sen-lombardo@rilegislature.gov

sen-lombardi@rilegislature.gov

sen-gallo@rilegislature.gov

sen-miller@rilegislature.gov

sen-mccaffrey@rilegislature.gov

sen-mckenney@rilegislature.gov

sen-lynchprata@rilegislature.gov

sen-coyne@rilegislature.gov

sen-raptakis@rilegislature.gov

sen-morgan@rilegislature.gov

sen-valverde@rilegislature.gov

sen-sheehan@rilegislature.gov

sen-sosnowski@rilegislature.gov

sen-algiere@rilegislature.gov

sen-goodwin@rilegislature.gov

admin@nohpvmandateri.com

  • Make THREE phone Calls. Senator Crowley (sponsor of the bill)  home 4017258526     politely ask her to withdraw her bill, that it intrudes on your medical privacy and circumvents informed consent. Senate President  Ruggerio  office 4012226655  Say the same, and add that the RIDOH has already shown to not be trustworthy with patient data- that they shouldn’t be allowed to collect more private citizen data elements. Last one is your personal Senator. Say the same as above and add you want them to Oppose this bill if it comes to a vote. You can look up your senator at vote.sos.ri.gov
  • Sign the petition and share on your social media. With this link Database.NOHPVmandateRI.com
  • Hang this flyer around your area on community boards and anywhere that will permit you to hang it up. Don’t forget to pre-cut along dotted vertical lines.
  • Do you have ideas? Thoughts on things that could improve the mission? Send them to us. We love to hear from you and appreciate feedback. Admin@NOHPVmandateRI.com

 

Thank you so much for your support and efforts, we greatly appreciate it.

senate Bad Database Tracking Bill Scheduled

senate Bad Database Tracking Bill Scheduled

THURSDAY MAY 9TH 4:30P is the hearing for S 676 has been scheduled in the senate lounge. Only three bills are currently on the agenda for this evening. Show at close to 4:30 as you are able – you can text Aimee 4017410386 to ask about status etc if you are running late.

This is the BAD DATABASE BILL that will automatically enroll every RI resident.

We need as many people as possible to show up to this hearing to oppose this bill. Last year it passed on the senate side. This year it is in committee on the house side early in the legislative session. PLEASE attend and bring a friend or two with you. We created a Facebook event also so it is easy to share and invite others on social media. https://www.facebook.com/events/423331301562642/

When speaking at a legislative hearing you are given 2 minutes to say your testimony. You may also bring written testimony only and not speak if you would prefer. Please bring 15 copies of your statement with S676 at the top, and your name- address – and phone printed clearly on the documents. The clerk will distribute them to the committee. If you are not able to make it and want us to submit your written testimony on your behalf – please email it to aimee@nohpvmandateri.com.

Talking Points to consider;

~ The only illness a vaccine is available for that is sometimes in high numbers, in adults, in RI is influenza. Therefore why are trying to track all adult vaccines in this state.

~ The database itself plus the personnel salaries to maintain it will inflate our already very large RI budget. When we can barely pay for our state expenses, why are we adding to the tally when there is no actual need for it.

~ Automatically opting residents into a database is unethical. Currently this already happens with the child database in RI, and has no option to opt out of it. This should never be supported in this kind of way. If a database was to even exist, each resident should need to sign up that they wish to participate, and voluntarily take part in it.

~ You want the right to make private and non tracked decisions regarding HPV vaccines for your preteens, if they start tracking adults, do you want them bothering you next with getting the HPV vaccine? It was recently approved for through age 45 by the FDA

~ It would continue forward with insurers and pharmacists on the vaccine recommendation committee, without any citizen parent advocates or even immunologists, on the panel.

~ The language for “opt out” of the bill is not defined, and does not guarantee your file will be deleted upon opting out.

~ The last two weeks there were topic hearings in congress about vaccination and removing exemptions for all vaccines (this would mean no longer being able to decide which ones you are okay with or not). Tracking you as an adult also means being able to try to later make adults comply to vaccinations without exemption options, and they will have a database to target you from.

 

We have also created a petition that we will print and bring with us to the committee hearing. You can sign and share the petition via database.NOHPVmandateRI.com

If the mandate of the HPV vaccine has shown us anything from RI Dept of Health, it is that they are not focusing on public health they are focusing on some kinds of plan with a goal that is tied to dollars. in 2014 when the HPV vaccine was added to the schedule for 7th graders, the RI Dept of Health received a grant for over $600,000 to market the HPV vaccine. That’s over a half a million tax dollars spent in just this state to market a vaccine that Merck profits from.

 

Take action today.

See our previous message about multiple RI bills

 

Thank you for supporting the efforts of Rhode Islanders against mandated HPV vaccinations, you are appreciated.

 

Please SHARE THIS MESSAGE with others to help us reach out to as many people as we all can together to be informed about this bill.

 

Follow us on social media too, and use hashtag #NOHPVmandateRI

B&W_Facebook_icontwitterlogoinstagram

 

 

 

Donate Today! Help us accomplish the mission

H 5165 has been scheduled

H 5165 has been scheduled

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H 5165 has been scheduled for May 1st in Room 101 of the House side of RI Statehouse. “The rise of the house” at approx 4:30p

(Here is the facebook event link https://www.facebook.com/events/415281805870598/ )

 

This bill was the first bill introduced this year that is on our side of the debate of informed consent and medical freedom. This bill will make philosophical exemptions available again in RI (as they once were) for vaccinations. RI Dept of Health has been saying for years if you don’t want the HPV vaccine or any vaccine just fill out the religious exemption form. Which is defined by your personal interpretation of your strongly held belief system. However, what about body autonomy? What about the fact that public education is free and available for all, and if you decide that after evaluating something like the HPV vaccine or the flu shot – you do not wish to get these things – you should not be forced to get the medical procedure. The philosophical exemption allows you to not get a vaccine for the simple fact you control your body (or your child’s body). This is extremely important with the case of the HPV vaccine in RI, as you can not spread HPV in a casual classroom environment to begin with. 

We strongly advocate for informed consent. If your only option not to get a medical procedure and still access the education you are entitled to as a citizen, is a religious exemption…….. than you are not being given true informed consent and the ability to decline appropriately. We encourage you to support this legislation that supports your rights as parents and individuals over body autonomy. Contact your personal legislators to support H5165, come to the hearing on Wed and email the committee to pass this bill.

 

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We also want to say a HUGE THANK YOU to our supporters. We did it and the books have arrived! HPV Vaccine on Trial book will be delivered to 26 legislators in RI Statehouse this week. All possible by the help and donations of all of you. Thank you so much.

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Please help us continue to fight forward. Give toward the awareness campaign to educate the public about the bad database bill and fight it in RI. 40 people donating $40 will get us a good start. 50 people donating $50 will get us to the full goal of a strong ad campaign across multiple platforms. Help us help you win Today. Donate Now

 

 

Thank you for all your support and continuing to stand for your rights and advocate for informed consent.

Aimee Gardiner

Director, Rhode Islanders against HPV vaccinations

4017410386

WE RAISED THE FUNDS TO SEND THE “HPV VACCINE ON TRIAL” BOOK TO 26 LEGISLATORS!! Thank you to everyone who supported this effort. To help us keep the fight strong, donate at www.gifts.nohpvmandateri.com

 

 

Database Tracking Without Your Consent

Database Tracking Without Your Consent

Database Tracking Without Your Consent Should Worry Moms

Currently, the Rhode Island Department of Health (RIDOH) has a database, called Kidsnet, and your child’s information is there forever without your consent. This database has all RI resident minor children enrolled in it, and it’s likely you’ve never heard of it. Why is that?

First, it is a robust database tracking things well beyond what you may want tracked, and leave you wondering why such a database needs to be held within the RIDOH.

For instance, it records who lives in the home with the child, and it also tracks blood specimen from birth. Since when is a signature or voluntary consent not needed for DNA data storage? It tracks if you’ve ever enrolled in programs like WIC or Early Intervention.

Mothers may be especially unimpressed to find out that they are tracking if the child was born vaginally, or by c-section. A mother’s level of education, and whether or not the mother was married at time of time of birth are fields in this database.

Is this the kind of data tracking that we want to happen without our consent or approval?

The icing on the cake to this Kidsnet is you cannot delete the file. RIDOH will not remove it regardless of your request. You may only block your child’s file— so that only the RIDOH can see it, and not other signed in accounts.

RIDOH will continue to track and look at your file, while your objections fall on deaf ears. Want to block your file? Well, they go out of their way to make that inconvenient. You need to call the RIDOH then have your doctor witness you signing a form in their office.

We are in the 21st century, using complex databases tracking data without consent, and yet you can not use a online portal or notarized letter to request that our children’s information is blocked. According to the RIDOH, we must call then wait to sign at doctors office to block our child’s data. An electronic file that we should be able to have completely removed and deleted from the system.

Legislation H5541 has been introduced this year, and has a hearing date scheduled for Mar 13th at Rhode Island State House. This legislation expands the Kidsnet database to all adults in RI as part of the National Adult Immunization Plan.

It renames the database Rhode Island Child and Adult Immunization Registry (RICAIR). This database will be set to automatically enroll all adults residing in the Ocean State. This expansion of data mining without consent will now be for every Rhode Island resident no matter the age. When RI has an inflated budget that over spends beyond our revenue, why are we even considering putting more tax dollars to bureaucratic control for something we don’t have an actual need for especially considering the recent UHIP disaster.

National Adult Immunization Plan is an actual plan from HHS, and Goal 3 is increase community demand for adult vaccinations. Goal 4  Foster innovation in adult vaccine development and vaccination-related technologies. This database bill falls into that plan. Do you feel you need multiple more vaccines as an adult? Just a few months ago the FDA approved the HPV vaccine to be expanded to age 45, do you want to be bugged about getting a HPV vaccine? There seems to be a pattern with RI Dept of Health, moving forward with choices that are dollar driven and not driven by a need or want of the RI residents. Rhode Island does not have epidemics for anything a vaccine is available for.

If you don’t want to be automatically enrolled in a government database that you can not delete your file from then please oppose bill H5541. Please attend the hearing at 4:00pm on Wednesday the 13th at the Rhode Island State House. Citizens are encouraged to testify in person in room 101 or submit written testimony to the committee. Secretary of the H.E.W. committee can be contacted via lcataldi@rilegislature.gov

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Aimee Gardiner

Aimee@NOHPVmandateRI.com

Instagram & Twitter @MyRightsRI

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http://www.health.ri.gov/publications/metadata/KIDSNETDataDictionary.pdf

https://www.hhs.gov/sites/default/files/nvpo/national-adult-immunization-plan/naip-path-to-implementation.pdf

https://nohpvmandateri.files.wordpress.com/2019/02/h5541.pdf

http://www.health.ri.gov/programs/kidsnet/about/confidentiality/#whatparentscando


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