Good Bill introduced & hearing scheduled

Good Bill introduced & hearing scheduled

2020 Legislative session is off to a great start with multiple bills supporting informed consent and health choice.

This notice is about bill H 7811 and the hearing for it on March 11th 2020 4p, just a few days away.

This bill expands vaccinations exemption to include philosophical reasons to opt out of vaccines for school. There are many reasons why a family may choose to opt out one particular vaccine (like the HPV vaccine) or to delay a few vaccines, etc. The parents are the only ones who should be deciding the best health practices for their children, these kinds of decisions should not be dictated by bureaucrats or politicians.

Get involved;

1 Please come and make a brief statement to the HEW committee this Wednesday, March 11 at the State House. Personal testimonies are what will make the greatest impact. A polite, fact based testimony is one of the most important ways to make change in the legislative process.

2 Call the members of HEW committee and Speaker Mattiello. You will likely need to leave them a brief message, asking them to vote 7811 onto the House Floor. Tell them why this legislation is important to you or why it should be passed. Phone numbers and more information included below.

3 Write a brief email and blind carbon copy (BCC) it to the entire House of representatives. Ask your family members and close friends to do the same. A few dozen emails can make a large impact in Rhode Island. Email address are included below.

4 Forward this notice to others to encourage them to also participate. Click here for facebook event for social media sharing.

The single greatest change you can make to vaccine laws is informing lawmakers of your concerns. Many of them simply don’t know enough about the national vaccine program. They need YOU to politely provide them with persuasive facts.

To testify at the State House

1 Limit testimony to 2 minutes.
2 You can submit documents to support your testimony if you include your name, email and write “In Support of H7811” on each page. You will need 23 copies of all written testimony.
3 We may be heard first but we may also wait around for hours before 7811 is heard. Bring a snack and water.
4 HEW committee on the first floor. Turn right after going through security and it is the last door on right. Room 101
5 After 3pm, you can park for free in the RIDOT lot across the street. You can also pay to park at the Providence Place Mall.
6 We encourage you to testify, but you do not have to. You can still come, sign in support of the bill and show by our numbers that we want informed consent for vaccines.

When you call the members of HEW committee and Speaker Mattiello:
1 Introduce yourself.
2 Tell them why they should vote YES to H7811.
3 Be brief. They are extremely busy and appreciate concise comments.

Phone numbers of HEW committee members and Speaker Mattiello:
Speaker Nicholas A. Mattiello (401) 222-2466
Chairman Joseph M. McNamara (401) 941-8319
Rep. Dennis M. Canario (401) 683-4926
Rep. David A. Bennett (401) 480-4647
Rep. Sherry Roberts (401) 222-2259
Rep. Julie A. Casimiro (401) 474-7961
Rep. Samuel A. Azzinaro (401) 596-1434
Rep. Mia Ackerman (401) 658-0981
Rep. John W. Lyle, Jr (401) 723-6104
Rep. Robert D. Phillips (401) 762-2010
Rep. Karen Alzate (401) 663-5600
Rep. Joe Serodio (401) 340-9150
Rep. Gregg Amore (401) 339-9378
Rep. Liana Cassar (401) 433-9539
Rep. June Speakman (401) 258-1134
Rep. Susan R. Donovan (401) 253-7837
Please thank Rep. Camille Vella-Wilkinson (401) 952-7340 for sponsoring the bill!

 

Email address of every Representative:

rep-ajello@rilegislature.gov
rep-blazejewski@rilegislature.gov
rep-walsh@rilegislature.gov
rep-kislak@rilegislature.gov
rep-Ranglin-Vassell@rilegislature.gov
rep-hull@rilegislature.gov
rep-mckiernan@rilegislature.gov
rep-lombardi@rilegislature.gov
rep-williams@rilegislature.gov
rep-slater@rilegislature.gov
rep-diaz@rilegislature.gov
rep-almeida@rilegislature.gov
rep-mendez@rilegislature.gov
rep-lima@rilegislature.gov
rep-mattiello@rilegislature.gov
rep-millea@rilegislature.gov
rep-jacquard@rilegislature.gov
rep-handy@rilegislature.gov
rep-mcnamara@rilegislature.gov
rep-bennett@rilegislature.gov
rep-Vella-Wilkinson@rilegislature.gov
rep-solomon@rilegislature.gov
rep-shekarchi@rilegislature.gov
rep-Shanley@rilegislature.gov
rep-noret@rilegislature.gov
rep-jackson@rilegislature.gov
rep-serpa@rilegislature.gov
rep-nardone@rilegislature.gov
rep-roberts@rilegislature.gov
rep-caldwell@rilegislature.gov
rep-Casimiro@rilegislature.gov
rep-craven@rilegislature.gov
rep-mcentee@rilegislature.gov
rep-tanzi@rilegislature.gov
rep-fogarty@rilegislature.gov
rep-filippi@rilegislature.gov
rep-azzinaro@rilegislature.gov
rep-kennedy@rilegislature.gov
rep-Price@rilegislature.gov
rep-chippendale@rilegislature.gov
rep-quattrocchi@rilegislature.gov
rep-ucci@rilegislature.gov
rep-fellela@rilegislature.gov
rep-costantino@rilegislature.gov
rep-ackerman@rilegislature.gov
rep-lyle@rilegislature.gov
rep-place@rilegislature.gov
rep-newberry@rilegislature.gov
rep-morin@rilegislature.gov
rep-casey@rilegislature.gov
rep-phillips@rilegislature.gov
rep-Marszalkowski@rilegislature.gov
rep-hawkins@rilegislature.gov
rep-obrien@rilegislature.gov
rep-corvese@rilegislature.gov
rep-mclaughlin@rilegislature.gov
rep-tobon@rilegislature.gov
rep-barros@rilegislature.gov
rep-alzate@rilegislature.gov
rep-johnston@rilegislature.gov
rep-messier@rilegislature.gov
rep-kazarian@rilegislature.gov
rep-serodio@rilegislature.gov
rep-amore@rilegislature.gov
rep-cassar@rilegislature.gov
rep-Knight@rilegislature.gov
rep-speakman@rilegislature.gov
rep-donovan@rilegislature.gov
rep-edwards@rilegislature.gov
rep-canario@rilegislature.gov
rep-cortvriend@rilegislature.gov
rep-abney@rilegislature.gov
rep-ruggiero@rilegislature.gov
rep-carson@rilegislature.gov

 

 

Dept of Health statements do NOT match bill language. Bad Database Bill fight forges forward

Dept of Health statements do NOT match bill language. Bad Database Bill fight forges forward
Read the email exchange below where DOH states comments not actually explicit defined in the bill. Neil also admits that the KidsNet database tracks many forms of information that you are not told is getting entered into a central database. Very concerning situation that everyone should be fighting against such databases. Unless a long term goal is to eventually go door to door, there is zero reason that informed consent shouldnt be the avenue in which to be included in such a database.
This bill will be heard in senate HHS committee Tues June 18th and on the house floor June 19 th to vote – contact as many legislators as possible to oppose. Email whole general assembly.
Sent: Thursday, June 13, 2019 7:45 AM
To: Washburn, Tricia (RIDOH) <Tricia.Washburn@health.ri.gov>; Hytinen, Neil (RIDOH) <Neil.Hytinen@health.ri.gov>Subject: [EXTERNAL] : Neil Hytanin presented false information regarding tracking bill H5541/S676

Good morning Tricia,
Yesterday afternoon (6/12/19), Neil Hytanin gave lawmakers false information regarding medical tracking bills H5541/S676. He told HEW committee members that the information of Rhode Islanders who opt out, would be removed from the data base. That is false. RIDOH does not currently expunge information nor is there any provision in the bill to compel them to. I’m writing to formally request documentation from RIDOH of his assertion that our medical information will be expunged if we opt-out of the medical registry.
Warmly,
Maddalena Cirignotta
——
From: Hytinen, Neil (RIDOH) <Neil.Hytinen@health.ri.gov>
Sent: Thursday, June 13, 2019 12:44 PMSubject: RE: [EXTERNAL] : Neil Hytanin presented false information regarding tracking bill H5541/S676

Good afternoon ,
Thank you for your inquiry. The Rhode Island Department of Health (RIDOH) have stated in multiple hearings that it is possible to remove all of an individual’s information from the Rhode Island Childhood and Adult Immunization Registry (RICAIR) should he or she choose to opt out. RIDOH plans to make that an option. We have heard your concerns regarding the accessibility of the form to avail oneself of the opt-out provision. In response to the concern you raised and in maintaining consistency with the current practice of contacting RIDOH, there is language included in the Sub A of the proposed legislation that will mandate an opt-out request form is available and submittable on RIDOH’s website.
It is important to emphasize, however, that should RIDOH remove all of an individual’s identifiable information from RICAIR at any given point in time, RIDOH has no way of preventing future information from being entered into the database. Should more information be entered after the initial removal of all identifiable information, the individual must make subsequent opt-out requests to RIDOH.
There is another option that individuals may want to consider. If there is basic information (name, date of birth, address, phone) for an individual, RIDOH can include a notation that this individual has requested no vaccination data be entered under his or her name.
So that individuals will have the chance to decide which option is best, RIDOH intends to allow the individual to designate on the form which option they choose.
RIDOH reiterates that the information included in the current immunization registry and what will be included in RICAIR is only a subset of the information that is included in KIDSNET. This seems to be a point of confusion. Immunization data is one portion of what is included in KIDSNET. In its totality, KIDSNET is a comprehensive data system RIDOH uses to manage multiple state and federal programs such as newborn screening, WIC, family home visiting, and lead prevention—all of which serve Rhode Islanders and keep them healthy.
RIDOH’s goal is not to just collect data to populate a lifetime registry. RIDOH’s goal is to build an effective registry that allows RIDOH staff to study vaccination rates in the community and guide Departmental strategies to achieve the high levels of immunization coverage necessary to keep Rhode Islanders protected from disease outbreaks. A lifetime registry will also allow RIDOH to better respond to disease outbreaks when they happen. 48 other states are already have authorization to establish lifetime registries (47 of which are already operational). Recently, the states of Washington and New York have experienced large outbreaks of preventable diseases, and public health officials have used the information contained in the lifetime registries to keep their citizens safe, save lives, and prevent unnecessary spending of healthcare dollars. States who have opt- in registries are not able to monitor vaccination rates and respond to outbreaks as effectively and efficiently as states with opt-out registries.
At a time when preventable diseases are making a resurgence around the country it is RIDOH’s duty and responsibility to do all it can to protect and preserve the public’s health.
Best,
Neil Hytinen
————–
To:”Hytinen, Neil (RIDOH)” <Neil.Hytinen@health.ri.gov>,
“Washburn, Tricia (RIDOH)” <Tricia.Washburn@health.ri.gov>
Hi Neil,

As a spokesperson for the Department of Health, it is imperative that you make truthful, fact based statements to lawmakers. Legislatures rely on RIDOH for accurate information.

Yesterday (6/12/19) during the consideration of H5541/S676, you told committee members that RIDOH will remove the information of those who opt out of the medical registry. As I stated in my original email, RIDOH does not currently expunge information nor is there any provision in the bill to compel them to. I’m writing to formally request documentation from RIDOH of your assertion that our medical information will be expunged if we opt-out of the medical registry. What part of the bill requires RIDOH to remove our information?

In response to your assertion that “the information included in the current immunization registry and what will be included in RICAIR is only a subset of the information that is included in KIDSNET,” The bill language removes age limitations for the medical database but does not limit RIDOH to tracking only immunization data. What part of the bill limits data collection to vaccinations?

Provisions requiring the reporting of immunization status and any other relevant information that the director determines appropriate for all persons under the age of eighteen years for the purpose of establishing and maintaining a childhood an immunization registry,; provided, however, that the information collected by the department for the immunization registry will only include data elements nationally endorsed by the Centers for Disease Control and Prevention as necessary to meet standards for immunization information systemshttp://webserver.rilin.state.ri.us/BillText/BillText19/SenateText19/S0676.pdf http://webserver.rilin.state.ri.us/BillText/BillText19/HouseText19/H5541.pdf

The list of data elements is 9 pages long and expressly pre-approves other data elements that individual may collect, again affording RIDOH enormous discretion with what they may collect. https://www.cdc.gov/vaccines/programs/iis/core-data-elements/iis-func-stds.html

If RIDOH only wishes to collect vaccination data, why does the department refuse to amend the language to vaccination only?

On a final note, you have stated that, “Recently, the states of Washington and New York have experienced large outbreaks of preventable diseases, and public health officials have used the information contained in the lifetime registries to keep their citizens safe, save lives, and prevent unnecessary spending of healthcare dollars.” Please keep in mind that the medical registry for adults in New York is OPT-IN ONLY WITH WRITTEN CONSENT and yet you have just indicated that the registry was effective.

Sincerely,

Maddalena Cirignotta

——-
From: Hytinen, Neil (RIDOH) <Neil.Hytinen@health.ri.gov>
Sent: Thursday, June 13, 2019 3:24 PM
Subject: RE: [EXTERNAL] : Neil Hytanin presented false information regarding tracking bill H5541/S676
Hi,
Yes as mentioned before we will have an option made available to remove information from RICAIR. Please accept this as documentation and the previous email as documentation even if the legislation is silent on the subject there will be that option. We are also fine with including language in statute. We would be happy to include the following language.
“Any person may opt out of the choose to remove their information from immunization registry by contacting the department directly by phone or by submitting a form online which shall be made available on the department’s website.”
As for limitations to what is collected the language in the bill reads as follows:
“information collected by the department for the immunization registry will only include data elements nationally endorsed by the Centers for Disease Control and Prevention to meet standards for immunization information systems.” Which can be found here: https://www.cdc.gov/vaccines/programs/iis/core-data-elements/iis-func-stds.html
Again RICAIR will be built as a separate database from KIDSNET and immunization data will be removed from both databases if requested.
Also attached are the ACIP recommended vaccines for both adults and children which are limitations that are set in current statute.
Finally, as mentioned before is the most effective way to ensure effective immunization coverage recommended by the CDC and WHO. It is an effective way to balance protecting our community while preserving individual rights.
Best,
Neil Hytinen
——–
Sent: Thursday, June 13, 2019 5:50PM
To: Hytinen, Neil (RIDOH) <Neil.Hytinen@health.ri.gov>; Washburn, Tricia (RIDOH) <Tricia.Washburn@health.ri.gov>
Subject: Re: [EXTERNAL] : Neil Hytanin presented false information regarding tracking bill H5541/S676
Hi Neil,
Are you saying that the ONLY documentation you have that RIDOH will remove our information are your emails to me? Keep in mind that you sent them AFTER your statements to HEW and you have acknowledged that “the legislation is silent on the subject.”
Additionally, you mentioned that, “should RIDOH remove all of an individual’s identifiable information from RICAIR at any given point in time, RIDOH has no way of preventing future information from being entered into the database. Should more information be entered after the initial removal of all identifiable information, the individual must make subsequent opt-out requests to RIDOH.”
You are proposing a system which would require that we opt-out repeatedly yet we would receive no written confirmation that we have opted out in the first place. That is unreasonably burdensome to the public and contradicts your promises to lawmakers that the opt-out process would be simple.
Opt-in is the only way to protect the rights of individuals against data mining. I reiterate that the list of CDC approved data elements is 9 pages long and expressly pre-approves other data elements that individual may collect, again affording RIDOH enormous discretion with what they may collect. https://www.cdc.gov/vaccines/programs/iis/core-data-elements/iis-func-stds.html [cdc.gov]

Again, I ask If RIDOH only wishes to collect vaccination data, why does the department refuse to amend the language to vaccination only?
Sincerely,
Maddalena Cirignotta

Fight against Medical Tracking in RI

Fight against Medical Tracking in RI

S676 sub A and H5541 sub A are coming close to being passed in RI statehouse. Keep fighting. It’s not over until its over.

Take a multi step action approach TODAY and throughout this week

CALL the Governor office to Oppose these bills. You won’t get her herself. Leave a msg with staff to oppose S676 sub A and H5541 sub A, and refuse to sign into law if they pass the floor vote. That you want our governor to respect our rights to privacy and informed consent. She should only support OPT IN for such an invasive database.

Calling Governor Phone: (401).222.2080

Call Senate President and Speaker of the House that you oppose the medical tracking database and they should also.

**Speaker Nicholas Matiello: 401-222-2466
**Senate President Ruggerio 401-222-6655

Call Senate HHS Committee Members to Vote NO on S676 sub A on Tues June 18th

Chairperson Joshua Miller 401-276-5507
Vice Chairperson Gayle Goldin 401- 276-5568
Senator Elizabeth Crowley 401-725-8526
Senator Thomas Paolino 401-749-6120
Senator Adam J. Satchell 401-615-5170
Senator James C. Sheehan 401-276-5567
Senator Bridget Valverde 401-379-0082
Senator Donna M. Nesselbush 401-728-3244
Senator Valerie Lawson 401-316-5666

Points on these bills;

RIDOH proposes an opt-out system that would require us to opt out, REPEATEDLY. We may be enrolled whenever we see a new doctor. There are no checks and balances of power. The same agency that tracks will also define the opt-out process those who wished to opt out would receive no written confirmation that they had been removed. RIDOH would also NOT be compelled to expunge any information collected while we were automatically enrolled.
This bill violates privacy and informed consent and proposes to legally data mine Rhode Islanders. New York, New Jersey and New Hampshire all have opt-in databases. We should too.

The Rhode Island Department of Health has introduce House Bill 5541 via Representative McNamara and Senate Bill 676 via Senator Crowley, to track the medical data of every person in Rhode Island. According to lines 9 & 10, RICAIR (tracking database) will collect, “data elements nationally endorsed by the Centers for Disease Control and Prevention” Meanwhile, CDC endorses ALL data elements that a tracking database collects, “This list does not include all data elements external information systems such as EHRs, vital records, practice management or billing systems are expected to send to an IIS. The list may not include all data elements an IIS produces, stores or sends. Data elements may be derived and architectural solution may differ among IIS.”  – Note the bold wording below the spreadsheet here from the CDC https://www.cdc.gov/vaccines/programs/iis/core-data-elements/CDC-Endorsed-Data-Element-Definitions.xlsx

RI ACLU has opposed this legislation see their statement here http://riaclu.org/images/uploads/H_5541_Immunization_Registry.pdf

 

Send two emails– one to whole house of representatives – one to whole senate.

Use info above to compose your email. You may also keep it to one paragraph like suggestion above for calling Governor.

Example Signature

Aimee Gardiner, RI Parent, Health Advocate, 4017410386

 

Copy and Paste list for House Representatives – BCC whole house in one email

Subject; OPPOSE H5541 subA floor vote on Medical Tracking Database

rep-blazejewski@rilegislature.gov
rep-walsh@rilegislature.gov
rep-kislak@rilegislature.gov
rep-Ranglin-Vassell@rilegislature.gov
rep-hull@rilegislature.gov
rep-mckiernan@rilegislature.gov
rep-lombardi@rilegislature.gov
rep-williams@rilegislature.gov
rep-slater@rilegislature.gov
rep-diaz@rilegislature.gov
rep-almeida@rilegislature.gov
rep-mendez@rilegislature.gov
rep-lima@rilegislature.gov
rep-mattiello@rilegislature.gov
rep-millea@rilegislature.gov
rep-jacquard@rilegislature.gov
rep-handy@rilegislature.gov
rep-mcnamara@rilegislature.gov
rep-bennett@rilegislature.gov
rep-Vella-Wilkinson@rilegislature.gov
rep-solomon@rilegislature.gov
rep-shekarchi@rilegislature.gov
rep-Shanley@rilegislature.gov
rep-noret@rilegislature.gov
rep-jackson@rilegislature.gov
rep-serpa@rilegislature.gov
rep-nardone@rilegislature.gov
rep-roberts@rilegislature.gov
rep-caldwell@rilegislature.gov
rep-Casimiro@rilegislature.gov
rep-craven@rilegislature.gov
rep-mcentee@rilegislature.gov
rep-tanzi@rilegislature.gov
rep-fogarty@rilegislature.gov
rep-filippi@rilegislature.gov
rep-azzinaro@rilegislature.gov
rep-kennedy@rilegislature.gov
rep-Price@rilegislature.gov
rep-chippendale@rilegislature.gov
rep-quattrocchi@rilegislature.gov
rep-ucci@rilegislature.gov
rep-fellela@rilegislature.gov
rep-costantino@rilegislature.gov
rep-ackerman@rilegislature.gov
rep-lyle@rilegislature.gov
rep-place@rilegislature.gov
rep-newberry@rilegislature.gov
rep-morin@rilegislature.gov
rep-casey@rilegislature.gov
rep-phillips@rilegislature.gov
rep-Marszalkowski@rilegislature.gov
rep-hawkins@rilegislature.gov
rep-obrien@rilegislature.gov
rep-corvese@rilegislature.gov
rep-maldonado@rilegislature.gov
rep-mclaughlin@rilegislature.gov
rep-tobon@rilegislature.gov
rep-barros@rilegislature.gov
rep-alzate@rilegislature.gov
rep-johnston@rilegislature.gov
rep-messier@rilegislature.gov
rep-kazarian@rilegislature.gov
rep-serodio@rilegislature.gov
rep-amore@rilegislature.gov
rep-cassar@rilegislature.gov
rep-Knight@rilegislature.gov
rep-marshall@rilegislature.gov
rep-donovan@rilegislature.gov
rep-edwards@rilegislature.gov
rep-canario@rilegislature.gov
rep-cortvriend@rilegislature.gov
rep-abney@rilegislature.gov
rep-ruggiero@rilegislature.gov
rep-carson@rilegislature.gov
admin@nohpvmandateri.com
governor@governor.ri.gov

 

Copy and Paste List for Senate – BCC an email to full senate

Subject; OPPOSE S676 subA floor vote on Medical Tracking Database

governor@governor.ri.gov
admin@nohpvmandateri.com
sen-Quezada@rilegislature.gov
sen-goldin@rilegislature.gov
sen-ruggerio@rilegislature.gov
sen-bell@rilegislature.gov
sen-metts@rilegislature.gov
sen-ciccone@rilegislature.gov
sen-cano@rilegislature.gov
sen-satchell@rilegislature.gov
sen-felag@rilegislature.gov
sen-Seveney@rilegislature.gov
sen-dipalma@rilegislature.gov
sen-euer@rilegislature.gov
sen-lawson@rilegislature.gov
sen-nesselbush@rilegislature.gov
sen-crowley@rilegislature.gov
sen-Paolino@rilegislature.gov
sen-conley@rilegislature.gov
sen-pearson@rilegislature.gov
sen-picard@rilegislature.gov
sen-rogers@rilegislature.gov
sen-archambault@rilegislature.gov
sen-delacruz@rilegislature.gov
sen-murray@rilegislature.gov
sen-lombardo@rilegislature.gov
sen-lombardi@rilegislature.gov
sen-gallo@rilegislature.gov
sen-miller@rilegislature.gov
sen-mccaffrey@rilegislature.gov
sen-mckenney@rilegislature.gov
sen-lynchprata@rilegislature.gov
sen-coyne@rilegislature.gov
sen-raptakis@rilegislature.gov
sen-morgan@rilegislature.gov
sen-valverde@rilegislature.gov
sen-sheehan@rilegislature.gov
sen-sosnowski@rilegislature.gov
sen-algiere@rilegislature.gov
sen-goodwin@rilegislature.gov

 

You can still sign the petition against this database being formed in RI

senate Bad Database Tracking Bill Scheduled

senate Bad Database Tracking Bill Scheduled

THURSDAY MAY 9TH 4:30P is the hearing for S 676 has been scheduled in the senate lounge. Only three bills are currently on the agenda for this evening. Show at close to 4:30 as you are able – you can text Aimee 4017410386 to ask about status etc if you are running late.

This is the BAD DATABASE BILL that will automatically enroll every RI resident.

We need as many people as possible to show up to this hearing to oppose this bill. Last year it passed on the senate side. This year it is in committee on the house side early in the legislative session. PLEASE attend and bring a friend or two with you. We created a Facebook event also so it is easy to share and invite others on social media. https://www.facebook.com/events/423331301562642/

When speaking at a legislative hearing you are given 2 minutes to say your testimony. You may also bring written testimony only and not speak if you would prefer. Please bring 15 copies of your statement with S676 at the top, and your name- address – and phone printed clearly on the documents. The clerk will distribute them to the committee. If you are not able to make it and want us to submit your written testimony on your behalf – please email it to aimee@nohpvmandateri.com.

Talking Points to consider;

~ The only illness a vaccine is available for that is sometimes in high numbers, in adults, in RI is influenza. Therefore why are trying to track all adult vaccines in this state.

~ The database itself plus the personnel salaries to maintain it will inflate our already very large RI budget. When we can barely pay for our state expenses, why are we adding to the tally when there is no actual need for it.

~ Automatically opting residents into a database is unethical. Currently this already happens with the child database in RI, and has no option to opt out of it. This should never be supported in this kind of way. If a database was to even exist, each resident should need to sign up that they wish to participate, and voluntarily take part in it.

~ You want the right to make private and non tracked decisions regarding HPV vaccines for your preteens, if they start tracking adults, do you want them bothering you next with getting the HPV vaccine? It was recently approved for through age 45 by the FDA

~ It would continue forward with insurers and pharmacists on the vaccine recommendation committee, without any citizen parent advocates or even immunologists, on the panel.

~ The language for “opt out” of the bill is not defined, and does not guarantee your file will be deleted upon opting out.

~ The last two weeks there were topic hearings in congress about vaccination and removing exemptions for all vaccines (this would mean no longer being able to decide which ones you are okay with or not). Tracking you as an adult also means being able to try to later make adults comply to vaccinations without exemption options, and they will have a database to target you from.

 

We have also created a petition that we will print and bring with us to the committee hearing. You can sign and share the petition via database.NOHPVmandateRI.com

If the mandate of the HPV vaccine has shown us anything from RI Dept of Health, it is that they are not focusing on public health they are focusing on some kinds of plan with a goal that is tied to dollars. in 2014 when the HPV vaccine was added to the schedule for 7th graders, the RI Dept of Health received a grant for over $600,000 to market the HPV vaccine. That’s over a half a million tax dollars spent in just this state to market a vaccine that Merck profits from.

 

Take action today.

See our previous message about multiple RI bills

 

Thank you for supporting the efforts of Rhode Islanders against mandated HPV vaccinations, you are appreciated.

 

Please SHARE THIS MESSAGE with others to help us reach out to as many people as we all can together to be informed about this bill.

 

Follow us on social media too, and use hashtag #NOHPVmandateRI

B&amp;W_Facebook_icontwitterlogoinstagram

 

 

 

Donate Today! Help us accomplish the mission

Action Items

Action Items

Tomorrow May 1st Room 101 at approx 4:30p is the hearing for bill H 5165

Please attend this hearing. Even if you need to show at 5p and leave at 5:30p – showing up to the state house makes a huge difference. When legislators see the numbers willing to drive in to support a cause, it matters. (to the right down the hall after going through security)

We hope many will decide to speak at the hearing However if you have not done this before and are not fully comfortable doing so; you can write your testimony and when they call your name you can go up and simply say- “Thank you for your time this evening, I am here to say I fully support bill H 5165, and I have submitted my written testimony for you to read”. You do not need to feel obligated to say more then that.

Your written statement must clearly state your name, and a form of contact whether that be your phone number or an email. The top must be clearly marked with the bill # 5165

Action 1 – CALL The HEW Committee Secretary to take your name and that you support this bill to pass out of committee and you wish it to be passed on to the committee members

Secretary: Lisa Cataldi
Phone: 401-222-2296
Email: lcataldi@rilegislature.gov

Action 2 – Submit your written testimony (if you are unable to attend) to the secretary email and CC to us at admin@nohpvmandateri.com ~ be sure to clearly label the bill H 5165 and your name in support of the legislation.

DO THESE TWO THINGS AS SOON AS YOU ARE ABLE

 

We have a gift set you can win too!! We are fighting hard on your behalf for informed consent, and transparency within the Dept of Health. We need your help to launch an ad awareness campaign across multiple platforms, and fight the Bad Database Bills.

40 People donating $40 is a good start to kick off, and 50 people donating $50 covers the entire campaign to win this fight. DONATE today

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For every $40 donated between now and May 2nd at 8p EST, your name will be entered to win this brand new essential oil gift set. Give the gift of victory Now 

 

If you have any further questions about the hearing or anything about what we advocate for at all please feel free to email aimee@nohpvmandateri.com or call me 4017410386

Aimee Gardiner ~ Director, Rhode Islanders against Mandated HPV Vaccinations

 

 

For an update on 2019 legislation Click Here

H 5165 has been scheduled

H 5165 has been scheduled

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H 5165 has been scheduled for May 1st in Room 101 of the House side of RI Statehouse. “The rise of the house” at approx 4:30p

(Here is the facebook event link https://www.facebook.com/events/415281805870598/ )

 

This bill was the first bill introduced this year that is on our side of the debate of informed consent and medical freedom. This bill will make philosophical exemptions available again in RI (as they once were) for vaccinations. RI Dept of Health has been saying for years if you don’t want the HPV vaccine or any vaccine just fill out the religious exemption form. Which is defined by your personal interpretation of your strongly held belief system. However, what about body autonomy? What about the fact that public education is free and available for all, and if you decide that after evaluating something like the HPV vaccine or the flu shot – you do not wish to get these things – you should not be forced to get the medical procedure. The philosophical exemption allows you to not get a vaccine for the simple fact you control your body (or your child’s body). This is extremely important with the case of the HPV vaccine in RI, as you can not spread HPV in a casual classroom environment to begin with. 

We strongly advocate for informed consent. If your only option not to get a medical procedure and still access the education you are entitled to as a citizen, is a religious exemption…….. than you are not being given true informed consent and the ability to decline appropriately. We encourage you to support this legislation that supports your rights as parents and individuals over body autonomy. Contact your personal legislators to support H5165, come to the hearing on Wed and email the committee to pass this bill.

 

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We also want to say a HUGE THANK YOU to our supporters. We did it and the books have arrived! HPV Vaccine on Trial book will be delivered to 26 legislators in RI Statehouse this week. All possible by the help and donations of all of you. Thank you so much.

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Please help us continue to fight forward. Give toward the awareness campaign to educate the public about the bad database bill and fight it in RI. 40 people donating $40 will get us a good start. 50 people donating $50 will get us to the full goal of a strong ad campaign across multiple platforms. Help us help you win Today. Donate Now

 

 

Thank you for all your support and continuing to stand for your rights and advocate for informed consent.

Aimee Gardiner

Director, Rhode Islanders against HPV vaccinations

4017410386

WE RAISED THE FUNDS TO SEND THE “HPV VACCINE ON TRIAL” BOOK TO 26 LEGISLATORS!! Thank you to everyone who supported this effort. To help us keep the fight strong, donate at www.gifts.nohpvmandateri.com

 

 

Next Step for H5541

Next Step for H5541

There was a terrific showing of attendance on Wed last week for the hearing of H5541 against the bad database bill. Thank you to everyone who took the time to show up and wrote to the committee.

Now be sure to let your representative of your district know you do not want them to support this bill. Bring it to their attention. We have access to software for THIS WEEK ONLY that lets you enter your address and send a direct msg to your rep. Do it NOW and then share this message with others too. We need to show that numbers are strong and we do not want this bill to pass.

 

Additional piece of info that you may not have seen in our previous notices —

HIPAA laws exempt agencies such as a health department from following HIPAA guidelines with data they have obtained. In other words, once the DOH has the data in the database they are exempt from HIPAA laws.

 

Act NOW to stop this database from happening in RI.

Write to Your Legislators

Follow this blog to get notified of new posts


Action Item Email

Action Item Email

Rhode Island currently has multiple bills in the statehouse this year and a couple more are still expected to be submitted in the topic of Health Choices.

There is a push across the nation and through federal agencies to impede on religious freedoms and medical freedoms, and that is simply atrocious. We should all support the rights we have and protect them, or we will fall farther from being a free nation.

BAD BILL

H5541 The Adult Database tracking bill from last year is back again!!  Read the blog post from last year about this bill written by a fierce activist. This is the bill that wants to add to the KidsNet database (one for children up to age 18 in RI~ auto enrolled without any opt out option already in place) that is auto enroll and you don’t sign yourself up, you are put in whether you want to be or not. The bill changes the name of the database to longer be Kidsnet.

Prewritten emails are ready for you to click and send! (www.2019.nohpvmandateri.com) You need to add your name and address at the bottom of the email before hitting send. You can fully edit and add to them. They are written very basic and to the point, we do encourage you to add one paragraph that is personal from you.

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Did you miss the email from the other day about all the bills? Read it here

Want to learn more about getting more involved? Reply with your town, phone, and interests. We will be happy to chat with you. admin@nohpvmandateri.com

Aimee Gardiner

Director

Rhode Islanders against mandated HPV vaccinations

NOHPVmandateRI.com

4017410386

FaceBook.com/RIagainstHPVmandate

Instagram & Twitter @MyRightsRI

Donate to the mission and add to the war chest of this fight!

The first bill has dropped

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2019 is here and the year is off to a great start so far.

Bill H5165 has been submitted to reinstate the philosophical exemption in the state of Rhode Island. The current online version of the bill shows 5 sponsors; Representatives Morin, Casey, Phillips, Vella-Wilkinson, and Casimiro.

Representatives Phillips and Casimiro are on the Health, Education, and Welfare committee that the bill will be heard in front of. Representative Roberts is also on this committee and we know she also supports this bill.

A date has not yet been set for a hearing on this bill. If you are not already on the email list then join us by clicking HERE.  To be up to date on when you can show and utilize your voice at the state house. There will be follow up with a date when it is on the calendar.

Call to Action ~~ Support the bill

Email & Call your personal representative for your district (you can find this at sos.ri.gov) tell them you want this bill to pass and you want them to support it.

Send an Email to the HEW committee members. This has been made easy for you, simply follow this link and you will be directed to send a pre-written email to the committee. Be sure to sign the email with your name and address, and you may add more content to it if you so wish to do so.

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We do expect more bills to support this session. We hope we don’t have to fight to oppose any, however that may be a necessity.

 

Thank you so much for your continued support of standing for parental rights and advocating for informed consent.

 

www.NOHPVmandateRI.com

 

 

Bills introduced in BOTH the house and the senate!

Bills introduced in BOTH the house and the senate!

Exciting News in RI in February. Legislation has been introduced in both the house and the senate in support of the mission to advocate for informed consent.

Senate Bill  S2405

Introduced By:
Senators Metts, Morgan, Paolino, Cote, and Archambault
This bill will allow for opt out by note vs exemption for the HPV vaccine by the wording of “non-casual contact disease transmitted by sexual contact”. Any parent or guardian can furnish the decision to the institution in writing. All consent forms and correspondence sent to parents and guardians about vaccinations shall affirmatively notify them of the option to opt out of participation in the vaccination program.
This bill is great for informed consent and we support that it is a move in the right direction. However, this bill does not remove HPV or any other non-casual contact disease future vaccine from not being included in the student vaccination list needed for school. It creates a philosophical exemption for that type of vaccine. We need you to help us send a message requesting that there be an amendment to the bill that changes wording to not having non-casual contact diseases on the list of vaccinations for school inclusion at all.
House Bills H7576 and H7686
 H7576
Introduced By:
Representatives Roberts, Quattrocchi, Lancia, Price, and Chippendale
This bill is an exact duplicate of the senate bill discussed above.
H7686
Introduced By:
Representatives O`Grady, McKiernan, Price, Roberts, and Filippi
This bill will add the philosophical exemption option for the vaccination program back in for Rhode Island. You can state it is against your feelings of what is best for your family, and not choose to state it is against your religious beliefs.
At this time the bills have not been scheduled for a hearing yet.
TWO call to action Items-
1- Call the Governor and leave a msg if needed. Stating that you “are tired of waiting for her to take action. That the HPV vaccine was added to the school schedule by administrative order and should be removed by her administrative office immediately.”
401-222-2080
2Send a prewritten email to the members of the house and senate committee in support of the legislation above. Don’t forget to sign the email with your name and address. You will need to send two emails. One to the house committee and one to the senate committee. CLICK HERE
Thank you for your support in this. It takes us all to make this impact together and you are an integral part of that process. Share this message with friends and family to be sure we overload the legislators with contact from the public.
Hearing is scheduled for March 28th 2018