Act Today against S676

Act Today against S676

THURSDAY MAY 9TH 4:30P is the hearing for S 676 has been scheduled in the senate lounge. Only three bills are currently on the agenda for this evening. Show at close to 4:30 as you are able – you can text Aimee 4017410386 to ask about status etc if you are running late.

This is the BAD DATABASE BILL that will automatically enroll every RI resident.

Summary of medical tracking bill S 676:
The Rhode Island Department of Health has introduce Senate Bill 676 via Senator Crowley, to track the medical data of every person in Rhode Island. According to lines 9 & 10, RICAIR (Rhode Island Child and Adult Immunization Registry) will collect, “data elements nationally endorsed by the Centers for Disease Control and Prevention” Meanwhile, CDC endorses ALL data elements that a tracking database collects, “This list does not include all data elements external information systems such as EHRs, vital records, practice management or billing systems are expected to send to an IIS. The list may not include all data elements an IIS produces, stores or sends. Data elements may be derived and architectural solution may differ among IIS.”

We need as many people as possible to show up to this hearing to oppose this bill. Last year it passed on the senate side. PLEASE attend and bring a friend or two with you. We created a Facebook event also so it is easy to share and invite others on social media. https://www.facebook.com/events/423331301562642/

Last year, the ACLU strongly opposed this weak and ineffective opt-out data collection system, citing 5 compelling reasons. Below is a particularly relevant example.
“Finally, and sadly, we have no reason to believe these fears are beyond the pale. In the recent past, the DOH has shown that it does not consider patient confidentiality a priority in its mission. Last year, Committee members will recall, the DOH supported legislation sponsored on behalf of the Attorney General to give law enforcement access to the Department’s prescription drug monitoring database without a warrant. DOH did so only a few years after it got a bill passed to vastly expand the prescription information in that database by agreeing that police would not be able to gain access to the information without a warrant. In the past year alone, the Department has proposed regulations to expand third party access to two other large agency databases with confidential patient information – the health information exchange and the allpayer claims database. There is simply no reason to trust the Department to put the confidentiality interests of patients first once this information is included in a DOH database.”

ARE YOU ALL IN AGAINST THIS INTRUSION OF YOUR MEDICAL PRIVACY AND RIGHTS TO YOUR PERSONAL DATA?! We created a multi step list for those ready to go all in for the fight for your rights. CLICK HERE for that list.

When speaking at a legislative hearing you are given 2 minutes to say your testimony. You may also bring written testimony only and not speak if you would prefer. Please bring 15 copies of your statement with S676 at the top, and your name- email or phone- printed clearly on the documents. The clerk will distribute them to the committee. If you are not able to make it and want us to submit your written testimony on your behalf – please email it to aimee@nohpvmandateri.com.

Talking Points to consider;

~ No limit to data tracking as stated in summary paragraph above.

~ Automatically opting residents into a database is unethical. Currently this already happens with the child database in RI, and has no option to opt out of it. This should never be supported in this kind of way. If a database was to even exist, each resident should need to sign up that they wish to participate, and voluntarily take part in it.

~ The Dept of Health was granted a prescription database with the statement that police officers would not have access to it without a warrant. They later advocated in favor of and a bill passed to allow that very database to be accessible to police in RI without a warrant.

~ The DOH is exempt from HIPAA laws. Once they have the data there is no privacy protection in place.

~ The language for “opt out” of the bill is not defined, and does not guarantee your file will be deleted upon opting out.  The current database for kids has a multi step inconvenient process that does not allow your file to be deleted.

~ The database itself plus the personnel salaries to maintain it will inflate our already very large RI budget. When we can barely pay for our state expenses, why are we adding to the tally when there is no actual need for it.

~ You want the right to make private and non tracked decisions regarding HPV vaccines for your preteens, if they start tracking adults, do you want them bothering you next with getting the HPV vaccine? It was recently approved for through age 45 by the FDA

 

==== Call Your senator ( can find who that is vote.sos.ri.gov) and tell them to oppose this bill that intrudes on your personal data and does not give any form of privacy guarantee. That you do not consent to the DOH having the ability to track any medical data field they decide. ====

 

We have also created a petition that we will print and bring with us to the committee hearing. You can sign and share the petition via database.NOHPVmandateRI.com

The Dept of Health has shown RI on more then one occasion that they should not be trusted. Stop the database tracking bill!

Take action today.

 

 

Thank you for supporting the efforts of Rhode Islanders against mandated HPV vaccinations, you are appreciated.

 

Please SHARE THIS MESSAGE with others to help us reach out to as many people as we all can together to be informed about this bill.

 

Follow us on social media too, and use hashtag #NOHPVmandateRI

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All In Action Items

All In Action Items

This Action Item list is specific to the database tracking bills H5541 & S676

  • Mark your calendar for May 9th at 4:30p to attend hearing on S676 in senate lounge. Personally ask two friends/family members to attend also.
    • Did you already email the Senate Health and Human Services committee?    Yes?! Great.   Either way – Email the whole senate with the emails list below place the list the in BCC field (should be able to copy and paste) Last year it passed the senate floor so fast. We are switching up strategy and having the whole senate be informed on why to oppose this bill. We want to be sure they are aware it is coming and the public is not in favor of it. See some talking points and details here

Mail to full senate     This link will email whole senate but will not place emails in the BCC field, we suggest using the BCC field. Here is the list of emails that you can copy and paste if that link also doesn’t work for you  – scroll past list to see other action items –

sen-Quezada@rilegislature.gov

sen-goldin@rilegislature.gov

sen-ruggerio@rilegislature.gov

sen-bell@rilegislature.gov

sen-metts@rilegislature.gov

sen-ciccone@rilegislature.gov

sen-cano@rilegislature.gov

sen-satchell@rilegislature.gov

sen-felag@rilegislature.gov

sen-Seveney@rilegislature.gov

sen-dipalma@rilegislature.gov

sen-euer@rilegislature.gov

sen-lawson@rilegislature.gov

sen-nesselbush@rilegislature.gov

sen-crowley@rilegislature.gov

sen-Paolino@rilegislature.gov

sen-conley@rilegislature.gov

sen-pearson@rilegislature.gov

sen-picard@rilegislature.gov

sen-rogers@rilegislature.gov

sen-archambault@rilegislature.gov

sen-delacruz@rilegislature.gov

sen-murray@rilegislature.gov

sen-lombardo@rilegislature.gov

sen-lombardi@rilegislature.gov

sen-gallo@rilegislature.gov

sen-miller@rilegislature.gov

sen-mccaffrey@rilegislature.gov

sen-mckenney@rilegislature.gov

sen-lynchprata@rilegislature.gov

sen-coyne@rilegislature.gov

sen-raptakis@rilegislature.gov

sen-morgan@rilegislature.gov

sen-valverde@rilegislature.gov

sen-sheehan@rilegislature.gov

sen-sosnowski@rilegislature.gov

sen-algiere@rilegislature.gov

sen-goodwin@rilegislature.gov

admin@nohpvmandateri.com

  • Make THREE phone Calls. Senator Crowley (sponsor of the bill)  home 4017258526     politely ask her to withdraw her bill, that it intrudes on your medical privacy and circumvents informed consent. Senate President  Ruggerio  office 4012226655  Say the same, and add that the RIDOH has already shown to not be trustworthy with patient data- that they shouldn’t be allowed to collect more private citizen data elements. Last one is your personal Senator. Say the same as above and add you want them to Oppose this bill if it comes to a vote. You can look up your senator at vote.sos.ri.gov
  • Sign the petition and share on your social media. With this link Database.NOHPVmandateRI.com
  • Hang this flyer around your area on community boards and anywhere that will permit you to hang it up. Don’t forget to pre-cut along dotted vertical lines.
  • Do you have ideas? Thoughts on things that could improve the mission? Send them to us. We love to hear from you and appreciate feedback. Admin@NOHPVmandateRI.com

 

Thank you so much for your support and efforts, we greatly appreciate it.

Next Step for H5541

Next Step for H5541

There was a terrific showing of attendance on Wed last week for the hearing of H5541 against the bad database bill. Thank you to everyone who took the time to show up and wrote to the committee.

Now be sure to let your representative of your district know you do not want them to support this bill. Bring it to their attention. We have access to software for THIS WEEK ONLY that lets you enter your address and send a direct msg to your rep. Do it NOW and then share this message with others too. We need to show that numbers are strong and we do not want this bill to pass.

 

Additional piece of info that you may not have seen in our previous notices —

HIPAA laws exempt agencies such as a health department from following HIPAA guidelines with data they have obtained. In other words, once the DOH has the data in the database they are exempt from HIPAA laws.

 

Act NOW to stop this database from happening in RI.

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