RI DOH calls Advocates of Informed Consent – antivaxxers

RI DOH calls Advocates of Informed Consent – antivaxxers



June 17, 2019


Rhode Island Dept of Health makes statements that do Not match S676 / H5541 bill language. Then calls the citizens of RI, protecting their right to informed consent and medical data privacy, “anti vaxxers”.

Bills S676 sub A and H5541 sub A, are to develop a tracking database for all RI residents of all ages. The bills, if passed, will auto-enroll all citizens in RI, without the ability to remove your file from the database. In addition all Dept of Health agencies are exempt from federal HIPAA regulation. Permitting them to allow third party access as they see fit without the knowledge or consent of those contained in the database.

RIDOH asserts that the database is to track vaccinations received only. The language of the bills do not explicitly outline vaccinations only. “approved CDC data elements” is the language the bill will allow tracking fields to include. The page on CDC website explicitly states this list is not exclusive; “This list does not include all data elements external information systems such as EHRs, vital records, practice management or billing systems are expected to send to an IIS. The list may not include all data elements an IIS produces, stores or sends. Data elements may be derived and architectural solution may differ among IIS.” https://www.cdc.gov/vaccines/programs/iis/core-data-elements/CDC-Endorsed-Data-Element-Definitions.xlsx

Neil P. Hytinen, Chief Public Affairs Officer and Legislative Liaison for RI Dept of Health, had an email exchange with RI Resident  Maddalena Cirignotta . His written statement asserts  “It is important to emphasize, however, that should RIDOH remove all of an individual’s identifiable information from RICAIR at any given point in time, RIDOH has no way of preventing future information from being entered into the database. Should more information be entered after the initial removal of all identifiable information, the individual must make subsequent opt-out requests to RIDOH. ”

Days later Neil Hytinen wrote an email to nurses and medical professionals in RI, calling anyone fighting against this intrusion of privacy “The antivaxxers” and continues by saying, “[antivaxxers] are flooding the inboxes of the House and Senate asking them to oppose our bill.” He proceeded to encourage the medical community to write to legislators using “small but formidable antivaccination lobby” is spreading misinformation in their email. https://nohpvmandateri.wordpress.com/2019/06/17/DOH-statements-do-not-match-bill-language    https://nohpvmandateri.wordpress.com/2019/06/17/ri-doh-calls-advocates-anti-vaxxers

Neil represents the RI Dept of Health. His statements are condescending and incorrect. Citizens like Maddalena, myself, and informed consent advocates, continue to thoroughly vet bill language and question DOH statements. The core of the fight against these bills, is our right to be informed in addition to privacy of our papers as guaranteed in the 4th amendment.

Neil decided name calling and stereotyping was the correct mode of action. RI citizens have a right to know about how officials that represent our state are acting behind the scenes. Discrediting and ignoring educated and important questions.” Emphasized Aimee Gardiner, Informed Consent advocate, and Director of Rhode Islanders against mandated HPV vaccinations.

Everyone should be concerned about this behavior and particularly these bills. Database information collection of any kind should be opt in. Neil’s own words explain how cumbersome the opt out process would be executed.”

Citizens who want to oppose this legislation should contact their personal legislators. The house will vote on H5541sub A this week.



Aimee Gardiner
Director, Rhode Islanders Against Mandated HPV Vaccinations
(401) 406.2647


About the Rhode Islanders Against Mandated HPV Vaccinations

Rhode Islanders Against Mandated HPV Vaccinations stands to reverse the HPV vaccine mandate in RI. We advocate for informed consent and to place the future process of vaccines considered for mandates in a form of complete public awareness and the ability for citizens to have a voice.  For more information please visit NoHPVmandateRI.com.